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Measuring the impact and distress of health problems from the individual's perspective: development of the Perceived Impact of Problem Profile (PIPP)

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13 pages
The aim of this study was to develop and conduct preliminary validation of the Perceived Impact of Problem Profile (PIPP). Based on the biopsychosocial model of health and functioning, the PIPP was intended as a generic research and clinical measurement tool to assess the impact and distress of health conditions from the individuals' perspective. The ICF classification system was used to guide the structure of the PIPP with subscales included to assess impact on self-care, mobility, participation, relationships and psychological well-being. While the ICF focuses on the classification of objective health and health related status, the PIPP broadens this focus to address the individuals' subjective experience of their health condition. Methods An item pool of 23 items assessing both impact and distress on five key domains was generated. These were administered to 169 adults with mobility impairment. Rasch analysis using RUMM2020 was conducted to assess the psychometric properties of each set of items. Preliminary construct validation of the PIPP was performed using the EQ5D. Results For both the Impact and Distress scales of the PIPP, the five subscales (Self-care, Mobility, Participation, Relationships, and Psychological Well-being) showed adequate psychometric properties, demonstrating fit to the Rasch model. All subscales showed adequate person separation reliability and no evidence of differential item functioning for sex, age, educational level or rural vs urban residence. Preliminary validity testing using the EQ5D items provided support for the subscales. Conclusion This preliminary study, using a sample of adults with mobility impairment, provides support for the psychometric properties of the PIPP as a potential clinical and research measurement tool. The PIPP provides a brief, but comprehensive means to assess the key ICF components, focusing on the individuals' perspective of the impact and distress caused by their health condition. Further validation of its use across different health conditions and varying cultural settings is required.
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Abstract Background: The aim of this study was to develop an d conduct preliminary validation of the Perceived Impact of Problem Profile (PIPP). Base d on the biopsychosocial model of health and functioning, the PIPP was intended as a generic research and clin ical measurement tool to assess the impact and distress of health conditions from the individuals' perspecti ve. The ICF classification system was used to guide the structure of the PIPP with subscales included to assess impact on self-care, mobility, participation, relationships and psychological well-being. While the ICF focuses on the classification of objective health and health related status, the PIPP broadens this focus to address the individuals' subjective e xperience of their health condition. Methods: An item pool of 23 items assessing both impact and distress on five key domains was generated. These were administer ed to 169 adults with mobility im pairment. Rasch analysis using RUMM2020 was conducted to assess th e psychometric properties of each set of items. Preliminary construct validation of the PIPP was performed using the EQ5D. Results: For both the Impact and Distress scales of th e PIPP, the five subscales (Self-care, Mobility, Participation, Relationships, and Psychologic al Well-being) showed adequate psychometric properties, demonstrating fit to the Rasch model. All subscale s showed adequate person separation reliability and no evidence of differential item f unctioning for sex, age, educational level or rural vs urban residence. Preliminary validity testing us ing the EQ5D items provided support for the subscales. Conclusion: This preliminary study, using a sample of adults with mobility impairment, provides support for the psychometric properties of th e PIPP as a potential clinical and research measurement tool. The PIPP provid es a brief, but comprehensive means to assess the key ICF components, focusing on the indi viduals' perspective of the impa ct and distress caused by their health condition. Further validation of its use acro ss different health conditions and varying cultural settings is required.
Published: 29 June 2006 Received: 16 May 2006 Health and Quality of Life Outcomes 2006, 4 :36 doi:10.1186/1477-7525-4-36 Accepted: 29 June 2006 This article is available from: http://www.hqlo.com/content/4/1/36 © 2006 Pallant et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons. org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the orig inal work is properly cited.
Address: 1 Faculty of Life and Social Sciences, Swin burne University of Techno logy, P.O. Box 218, Hawthorn , Victoria 3122, Australia, 2 School of Psychology, Psychiatry & Psychological Me dicine, Monash University, 900 Dandenong Rd , Caulfield East, Victoria 3145, Australia and 3 School of Population Health, The University of Melbourne, Victoria 3010, Australia Email: Julie F Pallant* - jpallant@swin.edu.au; Rose Anne Misajon - roseanne.mis ajon@med.monash.edu.au; Elizabeth Bennett - bennette@unimelb .edu.au; Lenore Manderson - lenore.manderson@med.monash.edu.au Corresponding author *
Research Open Access Measuring the impact and distress of health problems from the individual's perspective: developm ent of the Perceived Impact of Problem Profile (PIPP) Julie F Pallant* 1 , RoseAnne Misajon 2 , Elizabeth Bennett 3 and Lenore Manderson 2