Transition of Care

Description

Pediatricians face many questions and challenges during patients’ transition from childhood to adulthood. Chronic diseases justify long-term medical, psychological, educational, and social management. The establishment of networks with adult endocrinologists is, therefore, very important to achieving optimal conditions for a successful transition period. In this book, leading experts discuss major public health issues such as diabetes and obesity. They also review genetic diseases, including Turner syndrome and congenital adrenal hyperplasia. All clinical cases are presented in a focused way to highlight any issues which might be discussed by the doctor with patients and family. Psychological approaches are debated as are proposals for defining specific tools to encourage autonomy during this life period. This book is a valuable tool and will be helpful in answering many questions for endocrinologists, adult and pediatric, dedicated to the long-term management of patients with chronic diseases.

Informations

• Publié par: S. Karger AG
• Date de parution: 11 juin 2018
• Nombre de lectures: 3
• EAN13: 9783318061437
• Langue: English
• Poids de l'ouvrage: 1 Mo

Extrait

Transition of Care
From Childhood to Adulthood in Endocrinology, Gynecology, and Diabetes
Endocrine Development
Vol. 33
Series Editor
P.-E. Mullis Bern
 
Transition of Care
From Childhood to Adulthood in Endocrinology, Gynecology, and Diabetes
Volume Editors
Michel Polak Paris Philippe Touraine Paris
14 figures, 3 in color, and 11 tables, 2018
Endocrine Development Founded 1999 by Martin O. Savage, London

_______________________ Prof. Michel Polak Pediatric Endocrinology, Gynecology and Diabetology, Centre de Référence des Pathologies Gynécologiques Rares et des Maladies Endocriniennes Rares de la Croissance et du Développement, Hôpital Universitaire Necker Enfants Malades Université Paris Descartes Paris (France)
_______________________ Prof. Philippe Touraine, MD Centre de Référence des Maladies Endocriniennes Rares de la Croissance et du Développement des Pathologies Gynécologiques Rares, Institut E3M-ICAN, Hôpitaux Universitaires Pitié-Salpêtrière Charles-Foix, Médecine Sorbonne Université Paris (France)
Library of Congress Cataloging-in-Publication Data
Names: Polak, Michel, editor. | Touraine, Philippe, editor.
Title: Transition of care : from childhood to adulthood in endocrinology, gynecology, and diabetes / volume editors, Michel Polak, Philippe Touraine.
Other titles: Endocrine development ; v. 33. 1421-7082
Description: Basel ; New York : Karger, 2018. | Series: Endocrine development, ISSN 1421-7082 ; vol. 33 | Includes bibliographical references and indexes.
Identifiers: LCCN 2018013606| ISBN 9783318061420 (hard cover : alk. paper) | ISBN 9783318061437 (eBook)
Subjects: | MESH: Transition to Adult Care | Chronic Disease | Physician-Patient Relations | Child | Adolescent | Young Adult
Classification: LCC RB210 | NLM W 84.7 | DDC 616/.0440846--dc23 LC record available at
https://lccn.loc.gov/2018013606
 
Bibliographic Indices. This publication is listed in bibliographic services, including Current Contents ® and PubMed/MEDLINE.
Disclaimer. The statements, opinions and data contained in this publication are solely those of the individual authors and contributors and not of the publisher and the editor(s). The appearance of advertisements in the book is not a warranty, endorsement, or approval of the products or services advertised or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements.
Drug Dosage. The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in government regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any change in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
All rights reserved. No part of this publication may be translated into other languages, reproduced or utilized in any form or by any means electronic or mechanical, including photocopying, recording, microcopying, or by any information storage and retrieval system, without permission in writing from the publisher.
© Copyright 2018 by S. Karger AG, P.O. Box, CH–4009 Basel (Switzerland)
www.karger.com
Printed on acid-free and non-aging paper (ISO 9706)
ISSN 1421–7082
e-ISSN 1662–2979
ISBN 978–3–318–06142–0
e-ISBN 978–3–318–06143–7
 
Contents
Preface
Touraine, P.; Polak, M. (Paris)
General Concepts
Challenges of the Transition from Pediatric Care to Care of Adults: “Say Goodbye, Say Hello”
Touraine, P.; Polak, M. (Paris)
“Child-Adult” Transition – Adolescence: When Illness Appears…
Malivoir, S. (Paris/Bobigny); Gueniche, K. (Paris/Boulogne-Billancourt)
Specific Illnesses
Transition of Care from Childhood to Adulthood: Congenital Adrenal Hyperplasia
Bachelot, A. (Paris)
Transition of Care from Childhood to Adulthood: Turner Syndrome
Conway G. (London)
Growth Hormone Deficiency in the Transition Age
Loche, S. (Genova); Di Iorgi, N.; Patti, G.; Noli, S.; Giaccardi, M.; Olivieri, I. (Cagliari); Ibba, A. (Genova); Maghnie, M. (Cagliari)
Management of Hypothalamic Obesity during Transition from Childhood to Adulthood
Bretault, M. (Boulogne-Billancourt); Carette, C.; Barsamian C.; Czernichow, S. (Paris)
Transitions in Care from Pediatric to Adult Health Care Providers: Ongoing Challenges and Opportunities for Young Persons with Diabetes
Garvey, K.; Laffel, L. (Boston, MA)
Transition of Care from Childhood to Adulthood: Congenital Hypogonadotropic Hypogonadism
Dwyer, A.A. (Chestnut Hill, MA); Pitteloud, N. (Lausanne)
The Transition from Paediatric to Adult Care for Youths with Thyroid Diseases: Outcome Issues and Challenges
Léger, J. (Paris)
Transition in Pediatric and Adolescent Hypogonadal Girls: Gynecological Aspects, Estrogen Replacement Therapy, and Contraception
Pedersen, A.T.; Cleemann, L.; Main, K.M.; Juul, A. (Copenhagen)
Fertility Preservation in Endocrine Disorders during Transition for Girls
Bénard, J. (Bondy/Bobigny); Sermondade, N. (Bondy); Grynberg, M. (Bondy/Bobigny/Paris)
Fertility Preservation in Klinefelter Syndrome Patients during the Transition Period
Rives, N.; Rives, A.; Rondanino, C.; Castanet, M.; Cuny, A.; Sibert, L. (Rouen)
Author Index
Subject Index
 
Preface
Transition can be defined from physiological changes during the period from the end of puberty to the attainment of an adult phenotype. This gives the length of transition as approximately 5–10 years depending on the patient, although it may be longer or shorter depending on multiple factors. Alternatively, transition can be seen as the point in time when the patient can no longer be seen by the pediatrician and is asked to make the next appointment with an endocrinologist for adults. However, focusing on a single time point is not the best way to handle this process for a patient because the transition from pediatric care to the adult one needs to be structured. A large number of patients with chronic diseases drop out of therapy during the transition period. Multiple factors are associated with this, such as lack of understanding of the disease process, insufficient knowledge of treatment options, the patient becoming more independent, and the requirement for interaction with a new set of health care workers. Education regarding disease management and treatment options should be provided from an early age and through the transition period.
However, endocrine specialists will view the transition period differently, depending on whether they are pediatric endocrinologists, who mainly deal with congenital diseases in which auxology is important, or adult endocrinologists, who are more concerned with body composition and metabolic factors.
In this textbook, key leaders on different topics present their viewpoints as a pediatric and/or an adult endocrine specialist, most referring to a case study outlining practical aspects of transition. This textbook presents different approaches to patients with chronic diseases, either rare or not, during the transition period.
We definitely hope that this textbook will be helpful for the reader in front of a patient during the transition period and foster the development of specific health care pathways dedicated to the patient during this key period of life.
Philippe Touraine , Paris Michel Polak , Paris
General Concepts
Polak M, Touraine P (eds): Transition of Care: From Childhood to Adulthood in Endocrinology, Gynecology, and Diabetes. Endocr Dev. Basel, Karger, 2018, vol 33, pp 1–9 (DOI: 10.1159/000487521)
______________________
Challenges of the Transition from Pediatric Care to Care of Adults: “Say Goodbye, Say Hello”
Philippe Touraine a · Michel Polak b
a Centre de Référence des Maladies Endocriniennes Rares de la Croissance et du Développement des Pathologies Gynécologiques Rares, Institut E3M-ICAN, Hôpitaux Universitaires Pitié-Salpêtrière Charles-Foix, Médecine Sorbonne Université, and b Pediatric Endocrinology, Gynecology and Diabetology, Centre de Référence des Pathologies Gynécologiques Rares et des Maladies Endocriniennes Rares de la Croissance et du Développement, Hôpital Universitaire Necker Enfants Malades, Université Paris Descartes, Paris, France
______________________
Abstract
Transition has been defined as “the purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-oriented health care systems.” We will here describe the challenges of such a process: challenges coming from the pediatrician, from the adolescent, linked to the disease itself, and those from the parents. We will outline how to overcome those fears and challenges to provide a successful transition process. A key factor to underline that process is that a relationship based on confidence should be established