Hearing Voices

Description

Qualitative methods are increasingly useful as psychiatry shifts from a focus on symptom reduction to enabling people to live satisfying and meaningful lives. It becomes important to achieve a deeper understanding of the ways in which mental illness interferes with everyday life and the ways in which people can learn to manage and minimize illness in order to pursue their lives as fully as possible. Although qualitative methods in psychiatry have seen a dramatic upsurge, relatively few published studies use such methods specifically to explore the lives, socio-culturally and experientially, of those with first-episode psychosis.

This book highlights qualitative research in early psychosis. The first half of the book centres on the individual lived experience of psychosis—from the perspective of the individual, the family, and the practitioner. The second half moves from the micro level to the macro, focusing on broader system issues, including medical trainees’ encounters with first-episode psychosis in the emergency room and the implementation of first-episode clinics in the UK and Australia. This text is timely, as the proliferation of early-psychosis clinics worldwide demands that we inquire into the subjective experience of those impacted by psychosis and the social contexts within which it occurs and is lived out.

Hearing Voices is the first in a series of titles from The Community Health Systems Resource Group at The Hospital for Sick Children. This series will educate researchers, policy-makers, students, practitioners, and interested stakeholders on such topics as early intervention in psychosis, aggressive-behaviour problems, eating-related disorders, and marginalized youth in educational contexts.

Sujets

• Psychology

Informations

• Publié par: Wilfrid Laurier University Press
• Date de parution: 07 août 2012
• Nombre de lectures: 2
• EAN13: 9781554588855
• Langue: English
• Poids de l'ouvrage: 1 Mo

Extrait

HEARING VOICES
HEARING VOICES
QUALITATIVE INQUIRY IN EARLY PSYCHOSIS
Katherine M. Boydell and H. Bruce Ferguson, editors
Wilfrid Laurier University Press acknowledges the financial support of the Government of Canada through the Canada Book Fund for our publishing activities.

Library and Archives Canada Cataloguing in Publication
Hearing voices : qualitative inquiry in early psychosis / Katherine M. Boydell and H. Bruce Ferguson, editors.
(SickKids community and mental health series) Includes bibliographical references and index. Also issued in electronic format. ISBN 978-1-55458-263-1
1. Psychoses. 2. Psychoses-Treatment. I. Boydell, Katherine II. Ferguson, H. Bruce III. Series: SickKids community and mental health series
RC512.H42 2012 616.89 C2011-907608-X
___________
Electronic monograph. Also issued in print format. ISBN 978-1-55458-310-2 (PDF). - ISBN 978-1-55458-885-5 (EPUB)
1. Psychoses. 2. Psychoses-Treatment. I. Boydell, Katherine II. Ferguson, H. Bruce III. Series: SickKids community and mental health series (Online)
RC512.H42 2012 616.89 C2011-907609-8
2012 The Hospital for Sick Children
DISCLAIMER: This book is a general guide only and should never be a substitute for the skill, knowledge, and experience of a qualified medical professional dealing with the facts, circumstances, and symptoms of a particular case.
Cover design by Chris Rowat Design. Front-cover image: Breaking Free (acrylic paint), by Roberto Louis Foz. Text design by Daiva Villa, Chris Rowat Design.
This book is printed on FSC recycled paper and is certified Ecologo. It is made from 100% post-consumer fibre, processed chlorine free, and manufactured using biogas energy.
Printed in Canada
Every reasonable effort has been made to acquire permission for copyright material used in this text, and to acknowledge all such indebtedness accurately. Any errors and omissions called to the publisher s attention will be corrected in future printings.
No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means, without the prior written consent of the publisher or a licence from the Canadian Copyright Licensing Agency (Access Copyright). For an Access Copyright licence, visit http://www.accesscopyright.ca or call toll free to 1-800-893-5777.
Published by Wilfrid Laurier University Press Waterloo, Ontario, Canada www.wlupress.wlu.ca
Contents
Preface
Katherine M. Boydell University of Toronto
Acknowledgements
List of Abbreviations
Introduction to Early Intervention in First Episode Psychosis
Jean Addington University of Calgary
CHAPTER ONE Recognition of Psychosis in the Pathway to Mental Health Care
Katherine M. Boydell, Elaine Stasiulis, Brenda M. Gladstone, Tiziana Volpe, Jean Addington, Paula Goering, Terry Krupa, and Elizabeth McCay University of Toronto, Centre for Addiction and Mental Health, Queen s University, and Ryerson University
CHAPTER TWO Help-Seeking Experiences of Youth with First Episode Psychosis: A Research-Based Dance Production
Katherine M. Boydell, Siona Jackson, and John S. Strauss University of Toronto and Yale University
CHAPTER THREE Qualitative Research with Families of First Episode and Prodromal Patients
Ruth Gerson and Cheryl Corcoran Columbia University
CHAPTER FOUR Primary Care Perspectives of First Episode Psychosis
Helen Lester University of Manchester
CHAPTER FIVE Hearing Echoes: Image Identification and the Clinicians (Learning) Experience with Early Intervention
Joan McIlwrick University of Calgary
CHAPTER SIX Promoting Constructive Change in the Service System: A Qualitative Study of Change in Staff Attitudes with the Implementation of Early Intervention in Psychosis
Alan Rosen, Joanne Gorrell, Alison Cornish, Vivienne Miller, Chris Tennant, Louise Nash, and Dianne McKay University of Melbourne
CHAPTER SEVEN Ironic Interventions: Balancing Risks and Rewards in First Episode Psychosis via Qualitative Inquiry
Sue E. Estroff University of North Carolina at Chapel Hill
Conclusion
Katherine M. Boydell, H. Bruce Ferguson, and Sarah J. Bovaird University of Toronto
Index
Preface
Katherine M. Boydell
In Canada and internationally, recent years have witnessed an increased growth in qualitative inquiry in the health sciences. Qualitative research exploring the social determinants of health, clinical decision making, interaction between practitioners and patients, patient experiences of illness, health care delivery, and other social aspects of health and health care are regularly featured in medical, nursing, and other health research and professional journals. This text is based on an international symposium featuring such qualitative inquiry in the field of early psychosis, which was held in Toronto in October 2007. Research in the field of early psychosis needs to draw on different perspectives, methodologies, and techniques to generate breadth of knowledge and depth of understanding. Qualitative research is a broad umbrella term for research methodologies that describe and explain individual experiences, behaviours, interactions, and social contexts without the use of statistical procedures or quantification. The aim of most forms of qualitative research is to understand how the world is socially constructed by its participants as well as what meanings those constructions have for the participants. Qualitative methodologies are particularly appropriate for understanding individuals and groups subjective experiences of health and disease; social, cultural, and political factors in health and disease; and interactions among participants within health care settings.
Qualitative research questions focus chiefly on three areas: (1) language as a means to explore processes of communication and patterns of interaction within particular social groups; (2) the description and interpretation of subjective meanings attributed to situations and actions; and (3) theory building through discovering patterns and connections in the data. These methodologies have much to offer in the field of early intervention. This volume highlights the research that has been conducted internationally and illustrates its potential for impact at both the levels of service delivery and mental health policy.
The first half of the book is structured around the individual lived experience of psychosis-from the individual, family, and practitioner s perspectives. The second half moves the reader beyond the micro level towards the macro level, focusing on broader system issues such as medical trainees encounters with first episode psychosis (FEP) in the emergency room and the implementation of first episode clinics in the United Kingdom and Australia.
Jean Addington begins with an overview of the current state of empirical knowledge on early intervention. She affirms that the clinical and research practice in FEP accomplished to date constitutes a major reform in the treatment of schizophrenia. Tremendous shifts have been made worldwide to identify and treat young people at the very beginning of their illness. Programs have been, and are continuing to be, developed worldwide. The FEP field expects that treatments for people newly diagnosed with a psychotic illness should be available right at the beginning of their illness and that such treatments will need to be of the highest quality and aimed at the best recovery possible. She calls on researchers to further understand the ways in which mental illness interferes with everyday life and how people can learn to manage and minimize the illness so that they can pursue their lives to the best of their ability even in the face of persisting illness. Qualitative methods are uniquely well suited to this task.
Katherine Boydell and her colleagues present early findings from their series of case studies focusing on the pathways to mental health care. They highlight a particular case to illustrate the role of illness recognition and (mis)attribution, the experience of symptoms as reality, and the need for education and awareness in the pathway to mental health care. Identification of the various facilitators and roadblocks in accessing services will contribute to our understanding of the duration of untreated psychosis. By taking a comprehensive approach to understanding this journey, the dynamic complexity and interrelatedness of the role of the family, school, treatment system, and broader community are revealed.
Katherine Boydell, Siona Jackson, and John Strauss describe a research-based dance production that aims to provide knowledge about first episode psychosis in an accessible and meaningful way to a wide variety of audiences. The linking of qualitative research to artistic productions is a new and innovative field that has enormous potential to make research more vital, tangible, and relevant. Empirical qualitative data on the subjective, everyday experience of help seeking, as described by ten young people between the ages of sixteen and twenty-four, was expressed using movement and music (the dance). The performance presents the responses of young people to the first signs of psychosis, the factors that motivated their response, and the role that others played in help seeking. It highlights both the particularity and the universality of their stories.
Ruth Gerson and Cheryl Corcoran note that qualitative research with families is important for understanding the behavioural manifestations in the early stages of psychotic disorders and for discerning what is helpful to these young individuals and their families. They describe findings from qualitative interviews with family members of young people