Caregiving

Douglas C. Smith

Description

One of America's leading hospice experts offers practical, easy-to-follow advice for caregivers and a holistic approach to treating the infirm or the terminally ill. Author Douglas C. Smith organizes his material around "A Bill of Patient's Rights," a unique system he has taught to thousands throughout the country. He explains that the caregiver should enable patients to retain these rights: to be in control * to have a sense of purpose * to know the truth to be comfortable * to touch and be touched * to laugh to cry and express anger * to explore the spiritual to have a sense of family Included are easy-to-follow techniques and practical tools for improving care: assessment techniques dialogues meditations life reviews breathing exercises body revitalization methods ways that patients can evaluate and improve their own care and many others. Filled with inspirational stories and effective guidance, Caregiving also addresses how to communicate with difficult patients and those in denial, how to facilitate non-stressful family interaction, and other important topics. It will be invaluable to parents and children caring for their elders; physicians and nurses; social workers and home health aides; members of the clergy; and all facing the challenge of enriching patients' lives and spirits. Visit us online at http://www.mcp.com/mgr/macmillan
Introduction: A Bill of Patient&s Rights.

Chapter One: The Right to Be in Control.

Chapter Two: The Right to Have a Sense of Purpose.

Chapter Three: The Right to Know the Truth.

Chapter Four: The Right to Be Comfortable.

Chapter Five: The Right to Touch and Be Touched.

Chapter Six: The Right to Laughter.

Chapter Seven: The Right to Cry and Express Anger.

Chapter Eight: The Right to Explore the Spiritual.

Chapter Nine: The Right to Have a Sense of Family.

Chapter Ten: Conclusion.

Notes.

Resources.

Index.

Sujets

• Santé et bien-être
• Santé du quotidien
• Santé au quotidien
• Santé au quotidien
• Fitness
• Health
• Loss
• Caregiver
• Caregiving

Informations

• Publié par: Turner Publishing Company
• Date de parution: 02 mai 2008
• Nombre de lectures: 0
• EAN13: 9780470336885
• Langue: English

Extrait

CAREGIVING
Hospice-Proven Techniques
for Healing
Body and Soul
Douglas C. Smith

Wiley Publishing, Inc.
Copyright 1997 by Douglas C. Smith. All rights reserved.
Published by Wiley Publishing, Inc., New York, NY
No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, scanning or otherwise, except as permitted under Sections 107 or 108 of the 1976 United States Copyright Act, without either the prior written permission of the Publisher, or authorization through payment of the appropriate per-copy fee to the Copyright Clearance Center, 222 Rosewood Drive, Danvers, MA 01923, [phone], fax [phone]. Requests to the Publisher for permission should be addressed to the Legal Department, Wiley Publishing, Inc., 10475 Crosspoint Blvd., Indianapolis, IN 46256, [phone], fax [phone], E-Mail: [e-mail] .
Trademarks: Wiley and the Wiley Publishing logo are trademarks or registered trademarks of Wiley Publishing, Inc., in the United States and other countries, and may not be used without written permission. All other trademarks are the property of their respective owners. Wiley Publishing, Inc., is not associated with any product or vendor mentioned in this book.
Limit of Liability/Disclaimer of Warranty: While the publisher and author have used their best efforts in preparing this book, they make no representations or warranties with respect to the accuracy or completeness of the contents of this book and specifically disclaim any implied warranties of merchantability or fitness for a particular purpose. No warranty may be created or extended by sales representatives or written sales materials. The advice and strategies contained herein may not be suitable for your situation. You should consult with a professional where appropriate. Neither the publisher nor author shall be liable for any loss of profit or any other commercial damages, including but not limited to special, incidental, consequential, or other damages.
For general information on our other products and services or to obtain technical support please contact our Customer Care Department within the U.S. at 800-762- 2974, outside the U.S. at 317-572-3993 or fax [phone].
Wiley also publishes its books in a variety of electronic formats. Some content that appears in print may not be available in electronic books.
Library of Congress Cataloging-in-Publication Data:
Smith, Doug (Doug C.)
Caregiving : hospice-proven techniques for healing body and soul
/Douglas C. Smith.
p. cm.
Includes bibliographical references and index.
ISBN 0-02-861663-4
1. Terminal care-Psychological aspects. 2. Terminally ill.
3. Caregivers. I. Title.
R726.8S59 1997
362.175-dc21 97-21557
CIP
Book Design: A D Howell Design Manufactured in the United States of America.
10 9 8 7 6 5
Dedication
To Majorie, Maren, and Joshua
Acknowledgments
I first wish to give thanks to all the many people who work in the business of producing a book. Of special importance to me have been the editors Martha Jablow, Mary Ann Lynch, Betsy Thorpe, and Francesca Drago. I give thanks to all the people associated with Wiley.
I also wish to give thanks to those in the teaching profession, especially those teachers that not only challenge us to think more but also challenge us to do more. My favorites have been Bob Blanchard, David Till, Mary Lou Mohr, Lori Russell-Chapin, and Michael Maher.
I also wish to give thanks to all my family and friends who have offered emotional support to me during the writing of this book. I wish to especially thank my partner Mary whose gifts of love, understanding, patience, and humor have been much needed and appreciated.
Finally, I wish to give thanks to the hospice team of workers, especially the most important persons on the hospice team, the patients. Their courage, sacrifices, and mere presence provide treasures that cannot be found anywhere else.
Douglas C. Smith
Contents
Introduction: A Bill of Patient s Rights
Chapter One: The Right to Be in Control
Tools and techniques for promoting the right to be in control
Assessing Strengths
Conversations that Nourish
Allowing Your Role to Be Defined
Dialogue with Death
What a Way to Go: A Plan for Death
From I Need to I Can Get
Affirmations
Controlling Pain and Stress
Affirming Freedom
A Plan to Eliminate Stress
Eliminating Self-Blaming
Control for the Less Responsive Person
Letting Go of the Right to Be in Control
Do Not Straighten Out
The Caregiver s Attitude
The Caregiver s Humility
Giver-Receiver Dialogue
Getting Away from the Caregiver s Self-Imposed Musts
Changing the Caregiver s I Need to I Want
The Caregiver s Report Card
Chapter Two: The Right to Have a Sense of Purpose
Tools and techniques for promoting the right to have a sense of purpose
The Medicine Man
Random Acts of Kindness
In the Affirmative
Paradigm Shift
Changing Philosophy
Late-Life Crisis
Looking Forward to Tomorrow
Appreciation Award
Pass It On
A Simple Life Review
Single-Recollection Life Review
What the Teacher Says
Photographic Life Review
Recording a Message
Your Life in Review
Caring Guidelines
Chapter Three: The Right to Know the Truth
Tools and techniques for promoting the right to know the truth
Asserting the Right to Truth
Past Experiences and Present Thoughts
Thoughts: Hindering and Helpful
Countering Irrationality
Getting at the Freedom of Truth
Speaking of Pain
Discovering the Subjective Truth
The Grass Can Sometimes Be Browner
The Existential Truth
Chapter Four: The Right to Be Comfortable
Tools and techniques for promoting the right to be comfortable
Assessing for the Physical Dimensions of Stress
Meditating Stress Away
Object Meditation
The Garden of Tranquillity
Evoking Comfort
The Recipe for Comfort
A Peaceful Meditation
Dying before Death
God s Breath
Buddhist Meditation
Assessing Our Interpersonal Stressors
Managing Stress Away
Managed Stress Reduction
Relaxing Breathing for Caregivers
Imagining Stress Away
Meditations for a Calm Centeredness
The Caregiver s Continual Reminder
Respecting the Care Recipient
Chapter Five: The Right to Touch and Be Touched
Tools and techniques for promoting the right to touch and be touched
Foot Washing
Sensual Back Rub
Nourishing Touch
Hug Card
The Laying On of Hands
Touch without Tension
Getting in Touch with Touch
Body Revitalization
Chapter Six: The Right to Laughter
Tools and techniques for promoting the right to laughter
The Signs of Stress Relief
A Funny Operation
Funny Videos
A Funny Life Review
Short Imagery Experiences
What Stress?
Laughing for Dollars
The Caregiver s Facial Makeover
Morning Meditation
Chapter Seven: The Right to Cry and Express Anger
Tools and techniques for promoting the right to cry and express anger
Anger Time
Hitting, Ripping, and Stomping Anger Away
The Imaginary Sledgehammer
Releasing Anger
Here: Try Me
It Is Okay to Cry
Oh, Tractor!
Ongoing Monitoring of the Caregiver
Chapter Eight: The Right to Explore the Spiritual
Tools and techniques for promoting the right to explore the spiritual:
A Spiritual Assessment
The Journey Analogy
The Sacred Shrine
Picturing the Divine
The Spiritual Journal
A Letter from Your Higher Self
Spiritual Affirmations
Palms Together, Palms Up
Dedicating the Process
Inspiration through Expiration
A Holy Conversation
I Am Holy
The Indwelling God-Essence
A Meditative Prayer
Inward-Outward-Inward Prayer
Last Words
Spirituality for a Less Responsive Patient
Prayers without Theology
Chapter Nine: The Right to Have a Sense of Family
Tools and techniques for promoting the right to have a sense of family
Family Strength Assessment
Sentence Completion
Sharing Dreams
Positive Exchanges
Family Back Massage
Gift Giving
The Ideal Family
Family Member Role Definition
The Family Life Review
Coupons
The Five-Card Activity
I Can Be My Own Family
Family Discussion
Letting Go at the Time of Death
From Mourning to Disengaging
From Disengaging to Revitalizing
The Laminated Angel
Chapter Ten: Conclusion
Notes
Resources
Index
I NTRODUCTION
For the past decade, I have worked with people who are seriously ill and dying, many of them in hospice programs around the country. I have earned two advanced degrees in hospice work, done patient care for three hospices, and taught workshops at over one hundred hospices from Florida to California to Hawaii to Minnesota to Maine and in between. While continuing to do those workshops, I am currently executive director of a hospice that has a daily patient census in excess of 100 terminally ill people. But even before all of this, death and dying were all too familiar to me: I had already lost a father, a brother, and a daughter.
My own personal experiences, my professional work experiences, and the experiences of the many people who have attended my workshops have provided me with the inspiration and information for this book.
Over the years, I have come to know scores of courageous people as well as many who are frightened, angry, lonely, or in a turmoil of conflicting emotions as the end of their lives approaches. I have listened to their questions and concerns, held their hands, prayed and meditated with them, and sat by their bedsides in silence as they slept. Each one has taught me something about the human spirit. They have given me more than I could ever have given them.
Each of these individuals had a unique story. Through this book, I will share several of their stories with those of you who now find yourselves in the position of caring for a loved one or patient who is ill, frail, or near death. You may be a relative, friend, nurse, doctor, social worker, hospice