Heroic Struggle: Coping with Chronic Illnesses

Christine Matama

Description

Heroic Struggle: Coping with Chronic Illnesses guides a reader into living with a life-long disorder or disease. This is inspired by the personal experiences of the writer, who has beaten the odds, suffering from eczema for 14 years. It opens with a real-life situation and offers tips and insights for sufferers of chronic illness, victims, carers, families, friends, medical practitioners and institutions. It provides tangible approaches and coping mechanisms which different actors may and should adapt in such an adverse situation. Coping with chronic illnesses is not only a daunting task but rather an endeavour worth the label of a heroic struggle.

Chapter 1: Setting the Scene

Chapter 2: Eczema at a glance

Chapter 3: Chronic illnesses in Africa

Chapter 4: Chronic illnesses and supporting others

Chapter 5: Chronic illnesses in children

Chapter 6: Taking care of the elderly and those with chronic illnesses

Chapter 7: Living a healthy lifestyle

Sujets

• Body
• Eczéma
• Disease
• Social sciences
• Coping With
• Body (disambiguation)
• Sociologie, société et politique
• Social Science
• Health Issues

Informations

• Publié par: Fountain Publishers
• Date de parution: 28 mai 2019
• Nombre de lectures: 1
• EAN13: 9789970196739
• Langue: English
• Poids de l'ouvrage: 7 Mo

Extrait

Heroic Struggle: Coping with Chronic Illnesses — Personal Eczema Experiences

Heroic Struggle

Coping with Chronic Illnesses

Personal Eczema Experiences

Christine Matama

FOUNTAIN PUBLISHERS www.fountainpublishers.co.ug

Fountain Publishers P.O. Box 488 Kampala, Uganda E-mail: [e-mail]  [e-mail] Website: www.fountainpublishers.co.ug

Distributed in Europe and Commonwealth countries outside Africa by: African Books Collective Ltd, P. O. Box 721, Oxford OX1 9EN, UK. Tel/Fax: [phone] E-mail: [e-mail] Website: www.africanbookscollective.com

© Christine Matama 2019 First published 2019

All rights reserved. No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means electronic, mechanical, photocopying, recording or otherwise without the prior written permission of the publisher.

ISBN 978-9970-25-964-9 Author’s contacts: E-mail:[e-mail]  [e-mail] Mobile: [phone]

Dedication

I dedicate tis book to my dear parents, Mr Carles and Mrs Mable Musana; Dr and Mrs Sylvester Kugonza and family wo motivated me to write tis book; Dr Fred Kambugu, my treating pysician; Dr and Mrs Geoffrey Kabagambe Rugamba; Dr Mary Kiconco Begumya Ogara; Dr Victor Musiime; Peggy Van Leeuwen of te Parm Access — Amsterdam; as well as Mulago National Referral Hospital Skin clinic, National Medical Stores (NMS) and Dr Anatoli Kamale of Medical Researc Council (MRC) and Uganda Virus Researc Institute — Entebbe, wo offered comfort and wise counsel; my siblings: Priscilla Namara (Mrs Mwesigwa), Solomon Musinguzi, Rita Kasana, Nelson Akolebirungi, among oter siblings and cousins; Agnes Birungi, Lillian Kugonza, Grace Bagonza, Mr and Mrs Moses Kiyamba, Mr and Mrs Titus Musiime, Betty Kemigisa, Cloris Musa Irumba, Jackline Basemera, Seba N. Kasoma, helma Kiwinda and Jacqueline Akite as well as my aunts and uncles wo visited me; my relatives and friends for te love you sowed me wic gave me resilience to face anoter day and strengt to be able to sare tis story. My classmates at university (2004–2008); discussion group members: Doreen Akugizibwe (RIP), Lawrence Engorat, Angela Baitwabusa, Pastor Tony Ssekyanzi, Dr Ricard Mpango, Mrs Marjorie Muinda, Jamesa Wagwau and Ms Angela Balaba— tank you for te moral support! To Rev. Etienne and te entire Yout Praise and Worsip Team at Rwengoma Curc of Uganda — Fort Portal, te Carismatic Team from Town Curc Fort Portal, and all oter religious groups tat gave me moral support — I really appreciate all te elp!

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Contents

Foreword....................................................................................viii Acknowledgements ........................................................................ix Disclaimer..................................................................................... x

Chapter 1: Chapter 2: Chapter 3: Chapter 4:

Chapter 5: Chapter 6:

Chapter 7:

Setting te Scene ................................................1 Eczema at a glance............................................15 Cronic illnesses in Africa ................................31 Cronic illnesses and supporting oters ............................................49 Cronic illnesses in cildren ............................55 Taking care of te elderly and tose wit cronic illnesses ........................................61 Living a ealty lifestyle ...................................63

Bibliograpy ...............................................................................84 Index ..........................................................................................90

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Foreword

You are reading a book tat will provide an epic illustration of courage and optimism. his valuable information comes in andy for te reader to ave an in-dept understanding of te cronic ailments tat will aid in strengtening coping mecanisms in disease management by patients and ealt workers. My impression of Cristine Matama, autor, is tat se as endured a cronic illness — eczema — and se as also exibited enormous skills in supporting a greater number of cronically ill patients. Se as worked at te Joint Clinical Researc Centre, under my leadersip. From er experience as a patient of eczema and over eigt years of experience in caring for te cronically ill, Cristine Matama provides an informed approac to te management of cronic illnesses and igligts some of te most important unresolved callenges. Se ten illustrates ow imperative it is to explain te diagnosis to te patient early and empower tem wit more information about te condition tat contributes towards te pat to ealing. I igly recommend tis book because it provides insigts into coping wit persistent illnesses and will be of benefit to patients, teir families, care providers and te community at large.

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Peter N. Mugyenyi, MBChB, DCH, FRCPI, FRCPE, ScD Executive Director, Joint Clinical Research Centre Kampala – Uganda, 2017

Acknowledgements

I would like to acknowledge te following people for aving contributed tremendously towards te success of tis book: Prof. Peter N. Mugyenyi for giving tis book a foreword; Dr and Mrs Sylvester Kugonza wo offered me moral and psycological support and greatly motivated me to write tis book; Dr Fred Kambugu of te Kampala Skin Clinic — my treating pysician, wo treated me and still does treat me unconditionally; Dr and Mrs Geoffrey Kabagambe and Dr Anatoli Kamale wo offered me exceptional care; Dr Jon K. Nsibambi of Osler Skin Clinic and te entire Skin Clinic of Mulago National Referral Hospital; my employers, Joint Clinical Researc Centre (JCRC), Dr Cissy Kityo Mutuluuza, Dr Francis Kiweewa of Walter Reed, Dr Elizabet Kauda, Dr Mary Kiconco, Dr Beda Senkware, Dr Bernard Ayebazibwe, Nicolas Bwebare and Emmanuel Kanyemibwa of Fountain Publisers, togeter wit George Okot P’Bitek Oloya for proofreading tis work.

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