On investigative visits to nursing homes across the nation, Beth Baker has witnessed profound changes. Culture change leaders are tearing up everything—the floor plans, the flow charts, the schedules, the lousy menus, the attitudes, the rules—and starting from scratch. They are creating extraordinary places where people live in dignity and greet the day with contentment, assisted by employees who feel valued and appreciated. Perhaps most surprising, these homes prove that a high quality of life does not have to cost more. Some of the best homes in the nation serve primarily low-income people who are on Medicaid.
In Old Age in a New Age, Baker tell the story of a better way to live in old age. Although each home is different, they share common values: respecting individual choices; empowering staff; fostering a strong community of elders, staff, family members, and volunteers; redesigning buildings from a hospital model to a home (where pets and children are part of everyday life); and honoring people when they die. Her visits to more than two dozen facilities include those associated with the Eden Alternative, Green House, Kendal, and the Pioneer Network. Whether these transformational homes become the norm or the domain of a lucky few is the question that faces the next generation of elders, the baby boomers.
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Extrait
Old Age in awAgNee THE PROMISE OF TRANSFORMATIVE NURSING HOMES Old A ge i n a New A
ge
BETH BAKER
Old Age in a New Age he Promise of Transformative Nursing Homes
Prînted on àcîd-free àer. Mànufàctured în the Unîted Stàtes of Aerîcà Desîgned by Dàrîe Màyer
Frontîspîece:The àte Loîs Màrîe Newàn àt Bîgfork Vàey Counîtîes în 2003. Photo by Ross Wes.
Lîbràry of Congress Càtàogîng-în-Pubîcàtîon Dàtà
Od àge în à new àge : the roîse of trànsforàtîve nursîng hoes / Beth Bàker.—1st ed. . ; c. Incudes bîbîogràhîcà references ànd îndex. ISBN 13: 978-0-8265-1562-9 (coth : àk. àer) ISBN 13: 978-0-8265-1563-6 (bk. : àk. àer) 1. Nursîng hoes—Unîted Stàtes. 2. Oder eoe—Nursîng hoe càre—Unîted Stàtes. 3. Oder eoe—Unîted Stàtes—Socîà condî-tîons—21st century. I. Tîte. [DNLM: 1. Hoes for the Aged—orgànîzàtîon & àdînîstràtîon— Unîted Stàtes. 2. Nursîng Hoes—orgànîzàtîon & àdînîstràtîon— Unîted Stàtes. 3. Aged—sychoogy—Unîted Stàtes. 4. Orgànîzàtîonà Càse Studîes—Unîted Stàtes. 5. Quàîty of Lîfe—Unîted Stàtes. WT 27 AA1 B1670 2007] RA997.B323 2007 362.160973—dc22 2006038878
To our eders and those who ovîngy care for them
Contents
Acknowledgments îx Prologue xîIntroduction 1
P rt I:The Last Resort a
1 “Promîse You’ Never Put Me în a Nursîng Home” Wy We’e în Denîâl 72 “I Amost Crîed” he Unîvesâl LOnGînG O HOme 25 Stories from the Front Lines of Change Part II:
3Fy to Parîs” “We’ HOnOînG indîvîduâl COîce 41 4Are Nothîng” “We EmOweînG Sâf 615 “Thîs Is My Home” TeâînG U e Blueîns 85
7 From the Top of the Ferrîs Whee BeâkînG Bâîes 1238Bîngo Beyond FîndînG MeânînG în Lâe Lîe 1369 Famîy-Frîendy Homes WelcOmînG Relâîves O e Teâm 15210 The Zen of Memory Loss LîvînG în e MOmen 16111Bags Are Packed” “My DyînG în e NusînG HOme 174 Part III:Making the Case for Change 12 Too Good to Be True? ovecOmînG obsâcles 18513Boomers’ Legacy? Baby BuîldînG â MOvemen 200 Epilogue 209 Appendixes 211 Notes 219 Index 229
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Acknowledgments
îrst, I wîsh to thànk the eders, theîr fàîîes, stàff, ànd àdînîstràtors of F nursîng hoes who wecoed e ànd shàred theîr storîes. Theîr kînd-ness, honesty, ànd good huor însîred thîs book. Chàrene Boyd, Heîdî Gî, Steve Shîeds, ànd Bî Thoàs were àrtîcuàry generous wîth theîr tîe ànd suortîve of y efforts. I à gràtefu to the eàders of the Pîoneer Network, Actîon Pàct, Inc., ànd the Nàtîonà Cîtîzens’ Coàîtîon for Nursîng Hoe Refor who shàred theîr hîstory ànd însîghts wîth e over the four yeàrs I worked on the book. Theîr he wàs învàuàbe, às wàs thàt of the àny àcàdeîc reseàrchers whose knowedge îs relected here. If there àre àny errors în these àges, they àre y own. My edîtors àt theWashîngton PostHeàth sectîon gàve e àssîgnents thàt stàrted e on thîs journey. I à gràtefu to deàr frîends ànd fàîy ebers, too nuerous to nàe here, who beîeved în thîs roject ànd boosted y sîrîts. To y other, Betty, who, àong wîth y àte fàther, Bob, tàught e to ove the wrîtten word, à secîà thànks. My sîster, Bobbîe, shàred contàcts în the Ohîo Psycho-ogîcà Assocîàtîon, but ore îortànt gàve e her unwàverîng conidence. My sîster-în-àw, Denà Crosson, heed e gàther îortànt reseàrch àte-rîàs. Frîends who àssîsted e durîng the wrîtîng rocess încuded Bàrbàrà Arstrong, Mîchàe Cuîton, Frànk Gàànt, Kàren Gàànt, Leàh Gàsheen, Nàoî Lubîck, Bruce Johànsen, Kàtîe Pugîese, ànd Lynne Wàyon. Anne ànd Jî Wîîàs twîce generousy oàned e theîr hoe on Long Cove so thàt I îght wrîte wîthout înterrutîon. My dàughter, Sàràh, àde hefu suggestîons às I deveoed the roosà, ànd she ànd y son, Dànny, cheered e on. The exert edîtorîà eyes ànd enthusîàs of both Sàrà Tàber ànd Sà Horn were esecîày encouràgîng. I àso wànt to àcknowedge Lîîàn Morrîson for gîvîng e erîssîon to rerînt her oe, “Nursîng Hoe,” thàt irst àeàred în her wonderfu coectîonA Good Catch for the Unîverse(2005).