Living Well with Parkinson's

Glenna Wotton Atwood

Description

The long-awaited update to the definitive guide to successfully living with Parkinson's disease

Known for its upbeat, informative, and inspirational guidance, Living Well with Parkinson's includes a wealth of up-to-date medical information for Parkinson's sufferers, who number over 1 million in the U.S. alone. Combined with the author's poignant personal account of her own struggles with the disease, this new edition features coverage of pallidotomy (a new surgical technique), the dramatic implications of recent genetic research, and new drugs and therapies. The book also includes tips on dealing with social services and elder law, maintaining a positive attitude, handling issues with spouses and children, and finding support groups.

Glenna Wotton Atwood, a former home economics teacher from Maine, lived with Parkinson's for over two decades until her death in 1998. Lila Green Hunnewell (Rockaway, NJ) is a freelance writer and editor. Roxanne Moore Saucier (Bangor, ME) is a journalist with the Bangor Daily News.
Foreword by Dr. Robert G. Feldman.

Preface to the Second Edition by Blaine Atwood.

Preface to the First Edition.

Acknowledgments.

Chapter 1: Do Not Disturb!

Chapter 2: It’s Not Fair!

Chapter 3: Coping with Frustration: Practical Suggestions for Everyday Living.

Chapter 4: Nutrition That Affects Our Lives.

Chapter 5: Exercise, the Means to an Active Life.

Chapter 6: Attitude Makes All the Difference.

Chapter 7: Doctors and Other Health Professionals.

Chapter 8: Medications and Therapies.

Chapter 9: Spouses—Special and Otherwise.

Chapter 10: Relationships with Our Adult Children.

Chapter 11: Out of the Mouths of Babes . . . .

Chapter 12: One Day at a Time!

Chapter 13: With a Little Help from My Family and Friends.

Chapter 14: Support Groups: Where You Learn What Your Doctor Hasn’t Time to Tell You!

Chapter 15: Is There Life with Parkinson’s?

Appendix A: Parkinson’s Self-Help Organizations in the United States.

Appendix B: American Parkinson Disease Association Information and Referral Centers.

Appendix C: Parkinson’s Organizations in Canada.

Appendix D: Sources of Adaptive Equipment, Clothing, and Other Good Things.

Appendix E: Bibliography for Chapter 8: Medications and Therapies.

Appendix F: General Bibliography (Not Including Sources for Chapter 8).

Index.

Sujets

• Physical Impairments
• Enfermedad de Parkinson
• Health
• Parkinson
• Fitness

Informations

• Publié par: Turner Publishing Company
• Date de parution: 03 août 2007
• Nombre de lectures: 0
• EAN13: 9780470244302
• Langue: English

Extrait

L IVING W ELL WITH P ARKINSON S
L IVING W ELL WITH P ARKINSON S
SECOND EDITION
Glenna Atwood
with
Lila Green Hunnewell and Roxanne Moore Saucier
Foreword by Robert G. Feldman, M.D.
Professor and Chairman Emeritus, Department of Neurology Boston University School of Medicine

John Wiley Sons, Inc.
Copyright 1991, 2005 by Glenna Wotton Atwood, Lila Green Hunnewell, and Roxanne Moore Saucier. All rights reserved
Published by John Wiley Sons, Inc., Hoboken, New Jersey
Published simultaneously in Canada
No part of this publication may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, scanning, or otherwise, except as permitted under Section 107 or 108 of the 1976 United States Copyright Act, without either the prior written permission of the Publisher, or authorization through payment of the appropriate per-copy fee to the Copyright Clearance Center, 222 Rosewood Drive, Danvers, MA 01923, [phone], fax [phone], or on the web at www.copyright.com . Requests to the Publisher for permission should be addressed to the Permissions Department, John Wiley Sons, Inc., 111 River Street, Hoboken, NJ 07030, [phone], fax [phone].
The information contained in this book is not intended to serve as a replacement for professional medical advice. Any use of the information in this book is at the reader s discretion. The author and the publisher specifically disclaim any and all liability arising directly or indirectly from the use or the application of any information contained in this book. A health-care professional should be consulted regarding your specific situation.
For general information about our other products and services, please contact our Customer Care Department within the United States at [phone], outside the United States at [phone] or fax [phone].
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Library of Congress Cataloging-in-Publication Data :
Atwood, Glenna Wotton, date.
Living well with Parkinson s / Glenna Atwood, with Lila Green Hunnewell and Roxanne Moore Saucier / foreword by Robert G. Feldman.-Second edition
p. cm.
Includes bibliographical references and index.
ISBN 0-471-28223-5 (pbk.)
1. Atwood, Glenna Wotton, date. 2. Parkinson s disease-Popular works. I. Hunnewell, Lila Green. II. Saucier, Roxanne Moore, date. III. Title.
RC382.A88 2005
616.8 33-dc22
2004028305
Printed in the United States of America
10 9 8 7 6 5 4 3 2 1
To Blaine, my love
C ONTENTS

Foreword by Dr. Robert G. Feldman

Preface to the Second Edition by Blaine Atwood

Preface to the First Edition

Acknowledgments
C HAPTER 1 Do Not Disturb!
C HAPTER 2 It s Not Fair!
C HAPTER 3 Coping with Frustration: Practical Suggestions for Everyday Living
C HAPTER 4 Nutrition That Affects Our Lives
C HAPTER 5 Exercise, the Means to an Active Life
C HAPTER 6 Attitude Makes All the Difference
C HAPTER 7 Doctors and Other Health Professionals
C HAPTER 8 Medications and Therapies
C HAPTER 9 Spouses-Special and Otherwise
C HAPTER 10 Relationships with Our Adult Children
C HAPTER 11 Out of the Mouths of Babes . . .
C HAPTER 12 One Day at a Time!
C HAPTER 13 With a Little Help from My Family and Friends
C HAPTER 14 Support Groups: Where You Learn What Your Doctor Hasn t Time to Tell You!
C HAPTER 15 Is There Life with Parkinson s?

A PPENDIX A Parkinson s Self-Help Organizations in the United States
A PPENDIX B American Parkinson Disease Association Information and Referral Centers
A PPENDIX C Parkinson s Organizations in Canada
A PPENDIX D Sources of Adaptive Equipment, Clothing, and Other Good Things
A PPENDIX E Bibliography for Chapter 8: Medications and Therapies
A PPENDIX F General Bibliography (Not Including Sources for Chapter 8)

Index
Foreword
Glenna Atwood shared her experiences and insights about how she and her family coped with Parkinson s disease in the first edition of Living Well with Parkinson s .
Her words were educational and inspirational to many people affected by this intrusion in their life s plan. Glenna, with Blaine-her husband and best friend-have spoken to audiences throughout North America, sharing information on how to get the most out of their doctor, their medications, and each day of their lives. The inevitable progression of Parkinson s disease in Glenna provided more challenges to meet and deal with for the Atwoods. One problem encountered by patients is simply getting older and living with concurrent illnesses. In addition to Parkinson s, Glenna had a cardiac condition, which eventually caused her death. The second edition of this book includes her ideas and insights on living with advanced Parkinson s disease.
Each person with Parkinson s has his or her unique experiences, which require an individually tailored plan. What is universal in Parkinson s disease is the need for each person to learn and understand as much as possible about this condition, as this knowledge leads to more effective coping, proper management, and therapeutic success. This second edition of Living Well with Parkinson s provides invaluable information about the many additional medications, surgical interventions, and nutritional and physical therapy approaches that have been introduced for the care of patients with Parkinson s since the landmark discovery of levodopa. Armed with lessons learned from physicians, nurses, and other patients, people affected by Parkinson s need not be victims of the process.
-Robert G. Feldman, M.D.
Chairman Emeritus, Department of Neurology,
Professor of Neurology, Pharmacology,
and Public Health,
Boston University School of Medicine,
Director, American Parkinson Disease
Association Advanced Center for Research
at Boston University,
Medical Director, APDA Information and
Referral Center
Preface to the Second Edition
For those of you who already know that Glenna passed away, as well as for people who are meeting her for the first time in this book, I would like to share a little of her story.
Glenna had Parkinson s for about twenty years but never gave up living. A year after her diagnosis, she retired from teaching so that we could do some of the things we had planned for later in life.
We financed a motor home and traveled to many places in this country that we had always wanted to see. In fact, Glenna wrote most of the first edition of this book while we were on the road. She usually wrote in the morning while her medicine was most effective.
We talked about ideas, and she wrote while I drove. This was great for her, because we could plan the day around how she felt, with no phone calls or other interruptions.
As a result of the public response to the first edition, we were asked to speak to groups throughout most of the United States and parts of Canada. Again, we traveled by motor home, this time visiting people who had written to Glenna after reading the book.
She was always eager to go to the mailbox to discover who had written to her, and from where. She received letters not only from people in the United States but from those living in Europe and as far away as Australia and New Zealand. Glenna always tried to answer each letter.
As you will see, she didn t let Parkinson s get her down. In fact, we worked on the book s revision in a campground in Florida. She and I still ran the Parkinson s support group that we started more than eighteen years ago. She remained busy on committees, in church, and by planning special events with her grandchildren. They were her pride and joy.
It wasn t Parkinson s but other health problems that limited Glenna at the end. In fact, she died of a heart attack.
She was the greatest of copilots. I always told her that she made my world go around.
Be like Glenna-try to live your life to the fullest.
-Blaine Atwood
Preface to the First Edition
This is the book that I wish I could have found when my Parkinson s was diagnosed in 1981. At the time, very little information was available for the layperson, and the little that existed was very depressing. What I wanted to find was a source of information that would help me understand Parkinson s, that would give me an opportunity to relate to someone who has managed well in the same situation, and that would leave me with reasons to maintain a positive attitude.
This is my personal story: how I have coped and how I continue to cope positively as a person living with Parkinson s. It is interwoven with facts about managing Parkinson s as I have learned them since my diagnosis, through
Evaluating my own experiences Reading the current scientific literature Attending workshops, conferences, and symposia Participating actively in a support group Talking with other people who have Parkinson s
My Parkinson s specialist, Dr. Robert G. Feldman, and his knowledgeable team in the Parkinson s Program at Boston Medical Center (which is affiliated with Boston University School of Medicine) have also contributed significantly to my education.
In this book, I attempt to present the facts while, at the same time, sharing the ups and downs of my daily life as someone who has Parkinson s. I could not share my story without also relating some of the experiences of my family and friends, since they are so much a part of my life.
My hope is that all people with Parkinson s will find hope and guidance here: that this book may encourage them to say, Here is a person who has had Parkinson s for twenty years, and she and her family are living happy, productive lives. If she can do it, I can do it.
Parkinson s is a progressive disease. A cure is yet to be found. But with current medications and therapies, and the proper personal care, there is reason