Mila’s Star of the Week Story

Cary Gonser

Description

Mila’s Story is a non-fictional story about a non-verbal child with a rare and terminal metabolic disease, Pyruvate Dehydrogenase Complex Deficiency. She attends school but is unable to communicate. Mila’s Story answers some of the basic questions that Teachers and young classmates have for a special student. “Hope Flies” in a firefly derives from the thought, ‘how can Doctors and Scientists apply the concept of fireflies protein creating energy to shine, to humans with metabolic diseases, creating energy to live a healthier life?’

Sujets

• Daily Living
• Juvenile Nonfiction
• Health

Informations

• Publié par: Xlibris US
• Date de parution: 22 août 2022
• Nombre de lectures: 0
• EAN13: 9781669837299
• Langue: English
• Poids de l'ouvrage: 1 Mo

Extrait

Mila’s Star of the Week Story
PDCD is an inborn error of metabolism that prevents people from using their food for cellular energy. People with PDCD suffer from poor muscle tone, neurological damage, developmental delays, lethargy, and organ damage. The prognosis for children with PDCD is a life expectancy of about 3 years; prognosis is based on multiple variables.
To learn more about PDCD or help, please contact Mother of PDCD Warrior/ Nurse/Non-Profit Organizer, Emma Watt http://www.pdcdresearchfund.com
Motivational credits to Cousin-Writer-Photographer, Mick Schulte and Friend-Writer, Barb Danson.