Dermatological Diseases and Cumulative Life Course Impairment

Description

This publication presents currently available evidence about the extent to which dermatological diseases may, through their own nature as well as a multitude of comorbidities and their important interactions with social life, impair the life course of patients. Divided into four parts, the book starts with a brilliant introduction that highlights the importance of a life course approach in medicine from a medical as well as from a psychosocial point of view. The second part provides a basic presentation of the theoretical aspects of life course research and, more specifically, to the concepts of allostatic load and cumulative life course impairment (CLCI). The third part examines concepts related to CLCI, such as the ‘quality of life in dermatology’ or the ‘major life changing decisions’ influenced by dermatological diseases. The book concludes with an in-depth investigation of specific diseases where the concept of CLCI strikes as particularly relevant. The new and innovative evidence presented in this publication makes it essential reading to anyone who has to take social implications of skin diseases into account in their decision making: dermatologists, allergologists, pediatricians and general practitioners as well as researchers in medical sociology or opinion leaders in public health.

Informations

• Publié par: S. Karger AG
• Date de parution: 28 mai 2013
• Nombre de lectures: 0
• EAN13: 9783318024043
• Langue: English
• Poids de l'ouvrage: 1 Mo

Extrait

Dermatological Diseases and Cumulative Life Course Impairment
Current Problems in Dermatology
Vol. 44
Series Editors
Peter Itin Basel
Gregor Jemec Roskilde
Dermatological Diseases and Cumulative Life Course Impairment
Volume Editors
M. Dennis Linder Padua/Graz
Alexa B. Kimball Boston, Mass.
18 figures, 4 in color, and 13 tables, 2013
Current Problems in Dermatology
_______________________ M. Dennis Linder Department of Dermatology Medical School Unversity of Padua I-35128 Padua (Italy)
_______________________ Alexa B. Kimball Department of Dermatology Massachusetts General Hospital Harvard Medical School Boston, MA 02114 (USA)
Library of Congress Cataloging-in-Publication Data
Dermatological diseases and cumulative life course impairment / volume editors, M. Dennis Linder, Alexa B. Kimball.
p. ; cm. –– (Current problems in dermatology, ISSN 1421-5721 ; v. 44)
Includes bibliographical references and indexes.
ISBN 978-3-318-02403-6 (alk. paper) –– ISBN 978-3-318-02404-3 (e-ISBN)
I. Linder, M. Dennis. II. Kimball, Alexa Boer. III. Series: Current problems in dermatology; v. 44.
[DNLM: 1. Skin Diseases––psychology. 2. Adaptation, Psychological. 3. Life Change Events. 4. Quality of Life. W1 CU804L v.44 2013 / WR 140]
RL71
616.5––dc23
2013014776
Bibliographic Indices. This publication is listed in bibliographic services, including MEDLINE/Pubmed.
Disclaimer. The statements, opinions and data contained in this publication are solely those of the individual authors and contributors and not of the publisher and the editor(s). The appearance of advertisements in the book is not a warranty, endorsement, or approval of the products or services advertised or of their effectiveness, quality or safety. The publisher and the editor(s) disclaim responsibility for any injury to persons or property resulting from any ideas, methods, instructions or products referred to in the content or advertisements.
Drug Dosage. The authors and the publisher have exerted every effort to ensure that drug selection and dosage set forth in this text are in accord with current recommendations and practice at the time of publication. However, in view of ongoing research, changes in government regulations, and the constant flow of information relating to drug therapy and drug reactions, the reader is urged to check the package insert for each drug for any change in indications and dosage and for added warnings and precautions. This is particularly important when the recommended agent is a new and/or infrequently employed drug.
All rights reserved. No part of this publication may be translated into other languages, reproduced or utilized in any form or by any means electronic or mechanical, including photocopying, recording, microcopying, or by any information storage and retrieval system, without permission in writing from the publisher.
© Copyright 2013 by S. Karger AG, P.O. Box, CH-4009 Basel (Switzerland)
www.karger.com
Printed in Germany on acid-free and non-aging paper (ISO 9706) by Kraft Druck GmbH, Ettlingen
ISSN 1421-5721
e-ISSN 1662-2944
ISBN 978-3-318-02403-6
e-ISBN 978-3-318-02404-3
Contents
Foreword
Giele, J.Z. (Waltham, Mass.)
Introduction
Life Span and Life Course Approaches to Dermatological Disease
Ryff, C.D. (Madison, Wisc.)
Life Course, Life Course Modeling and Life Course Damage
Two Key Concepts in the Life Course Approach in Medicine: Allostatic Load and Cumulative Life Course Impairment
Offidani, E.; Tomba, E. (Bologna); Linder, M.D. (Padua/Graz)
Mathematical Modeling in Life Course Research
Barban, N. (Groningen); Linder, M.D. (Padua/Graz/Oslo)
Cumulative Life Course Impairment and Its Assessment
Life Course Impairment and Quality of Life Over Time
Sampogna, F. (Rome)
Concept of Major Life-Changing Decisions in Life Course Research
Bhatti, Z.U.; Salek, S.; Finlay, A.Y. (Cardiff)
Setting Up a Life Course Questionnaire
Sampogna, F. (Rome)
Cumulative Life Course Impairment: Identifying Patients at Risk
Augustin, M. (Hamburg)
Cumulative Life Course Impairment in Dermatological Patients
Cumulative Life Course Impairment: Evidence for Psoriasis
Mattei, P.L.; Corey, K.C.; Kimball, A.B. (Boston, Mass.)
Cumulative Life Course Impairment by Epidermolysis Bullosa
Fine, J.-D. (Nashville, Tenn.)
Cumulative Life Course Impairment in Vitiligo
Krüger, C.; Schallreuter, K.U. (Greifswald)
Cumulative Life Course Impairment in Melanoma and Nonmelanoma Skin Cancer
Piaserico, S. (Padova)
Cumulative Life Course Impairment in Chronic Wounds
Augustin, M. (Hamburg)
Cumulative Life Course Impairment in Other Chronic or Recurrent Dermatologic Diseases
Ibler, K.S.; Jemec, G.B.E. (Roskilde)
Cumulative Life Course Impairment Across Cultures and Medical Systems
Lima, X.T. (Campinas, SP)
Patients’ Narratives
Foulkes, A.C.; Warren, R.B. (Manchester)
Author Index
Subject Index
Foreword
This pioneering volume on dermatological diseases uses a life course perspective to arrive at a better understanding and more effective treatment of skin diseases. The authors have made important discoveries that come from taking the long view. They recognize the significance of a disfiguring skin disease for a person’s self-esteem, confidence, and quality of life. Such effects evolve over decades, not merely during the week before the patient sees a doctor. Thus, it is important to find and treat people while they are still young rather than let them wait for treatment later on. Delayed treatment can cause other problems to accumulate such as obesity, depression, and loneliness that are typical consequences of the embarrassment that comes from disfigurement and social stigmatization.
These lessons coming from the field of dermatology make an important contribution to the life course perspective that first emerged in the social sciences. Prior to the 1970s, psychologists had been able to draw a fairly detailed picture of child and adolescent development, and they had considerable knowledge of the aging process at the other end of life. But the nature of development between early adulthood and late middle age was largely unexplored. Early attempts to chart the territory of midlife were made by psychiatrists like Daniel Levinson in Seasons of a Man’s Life and popular writers like Gayle Sheehy in Passages. But a more comprehensive picture did not emerge until the extensive use of longitudinal surveys that followed children, adolescents, and adults over a number of years. Social scientists such as Glen Elder in his Children of the Great Depression traced the remarkable links between early experience and later outcomes. Moreover, formative influences were not all endogenous to the individual but included interactions with outside influences. Distinctive life course outcomes are further shaped by the stage of life when a significant event occurs, family influences such as socioeconomic status that lead to a deprived or nondeprived childhood, or exposure to massive historical changes such as war and depression. This new research identified a triad of factors in shaping the life course that came to be known as age, period, and cohort effects. More recently, life course scientists are beginning to recognize genetic differences that also powerfully shape life outcomes over the long term.
In this book on Cumulative Life Course Impairment in Dermatological Diseases, we see a focus that happens to be at the growing edge of life course research, namely the study of cumulative advantage and disadvantage. The focus on cumulative disadvantage is being carried into the world of medical research as it relates to a group of diseases that include both genetic factors and social components. The shame of dermatological disease makes one think of Erving Goffman’s classic study of Stigma, the description of a person without a nose. Goffman describes the painful social interaction and personal suffering that such a condition engenders. So too with an unattractive skin condition, the sufferer not only experiences physical discomfort but reluctance to socialize and the many accompanying dangers that can result such as weight gain, mood changes, substance abuse, social isolation, and downward social mobility. These effects, along with the availability of medical therapies that have vastly improved over the past 15 years, make clear the importance of early discovery and treatment. Such treatment will not only involve earlier intervention with the use of more effective new drugs but also bring attention to the negative social consequences of the disease and ways to mitigate them through face-to-face and online support groups. Using a life course perspective and a combination of new medical treatments and support programs, these authors illuminate the steps that can both heal patients’ bodies and strengthen their spirits.
Janet Z. Giele Waltham, Mass., USA
Introduction
Linder MD, Kimball AB (eds): Dermatological Diseases and Cumulative Life Course Impairment. Curr Probl Dermatol. Basel, Karger, 2013, vol 44, pp 1–16 (DOI: 10.1159/000350007)
______________________
Life Span and Life Course Approaches to Dermatological Disease
Carol D. Ryff
University of Wisconsin-Madison, Madison, Wisc., USA
______________________
Abstract
Social and behavioral scientists have long been interested in cumulative, life course processes. This chapter reviews prototypical questions and methods from the li