Palliative and End of Life Care, An Issue of Nursing Clinics

Mimi Mahon

Description

This issue of Nursing Clinics, Guest Edited by Mimi Mahon, features subject topics such as: Understanding Children's Involvment in Medical Decision Making; Symptom Management at End of Life; Assessing respiratory distress when the patient can’t self-report; Barriers to Palliative Care, Legislative Issues; End Stage Liver Disease: Symptoms & Practice Implications; Dying children: Creating opportunities out of a “Last Chance ; Decision making in palliative care; Discussing a family member's serious illness: children's and families' perspectives; Living with cognitive impairments in Long Term Care: Palliative Care & End of Life implications; Withdrawal of Life-Sustaining Therapy; The patient and family perspectives: Living with cancer; Palliative care concepts in the sickle cell population.

Sujets

• Medical
• Médecine
• Nursing
• Leadership
• Management

Informations

• Publié par: Saunders
• Date de parution: 28 septembre 2010
• Nombre de lectures: 3
• EAN13: 9781455700462
• Langue: English
• Poids de l'ouvrage: 2 Mo

Extrait

Nursing Clinics of North America
Palliative Care and End of Life Care

Margaret M. Mahon, PhD, RN
George Mason University, 4400 University Drive ms3c4, Fairfax, VA 22030, USA
ISSN  0029-6465 Volume 45 • Number 3 • September 2010
Elsevier
Table of Contents
Cover image
Title page
Contributors
Forthcoming Issues
Preface
Dedication
Symptom Management in Palliative Care and End of Life Care
Dyspnea
Constipation
Fatigue
Pain
Delirium
“I Want to Live, Until I don’t Want to Live Anymore”: Involving Children With Life-Threatening and Life-Shortening Illnesses in Decision Making About Care and Treatment
Cases
What needs to be considered when involving children in decisions about care and treatment
Clinical Decision Making in Palliative Care and End of Life Care
Components of decision making
Assessing Respiratory Distress When the Patient Cannot Report Dyspnea
Definitions
Prevalence of dyspnea and cognitive impairment at the end of life
Common self-report tools for assessing dyspnea
Behavioral assessment
Asphyxial threat
Autonomic nervous system activation
Fear activation
Fear activation by an asphyxial threat
Behaviors associated with respiratory distress
Fear and pulmonary stress behaviors to an asphyxial threat across cognitive states
Development and testing of a respiratory distress observation scale
Summary
Appendix Respiratory Distress Observation Scale (RDOS)
Sickle Cell Disease: An Opportunity for Palliative Care Across the Life Span
Ecological model of care for people with SCD
Barriers to Effective Palliative Care for Low-Income Patients in Late Stages of Cancer: Report of a Study and Strategies for Defining and Conquering the Barriers
Barriers study
Barriers to palliative care in low-income patients with late stages of cancer
Overcoming the barriers
Summary
End-Stage Liver Disease: Challenges and Practice Implications
Complications of end-stage liver disease
Is a Good Death Possible After Withdrawal of Life-Sustaining Therapy?
Methodology
Results
Discussion
The important role of health care providers in achieving good deaths
Limitations
Summary
Recruiting for End of Life Research: Lessons Learned in Family Research
Recruitment process
Benefits of participation
Barriers to participation
Recommendations for recruitment
Personal Relationships and Communication Messages at the End of Life
Love and Gratitude
Forgiveness
Helping Parents Make and Survive End of Life Decisions for Their Seriously Ill Child
Background
Clinical contextual features influencing parental end-of-life decision making
Factors influencing parental end-of-life treatment decision making
Relational model of end-of-life treatment decision making
Revised evidence-based practice guidelines for facilitating parental end-of-life treatment decision making
Summary
Acknowledgments
Living with Cancer: Perspectives on a Five Year Journey
The beginning
Hospitalization
Discharge
Treatment and recovery
Maintenance therapy
Remission
Recurrence
Palliative care and caregiving
Summary
Epilogue
Index
Contributors

Consulting editor
SUZANNE S. PREVOST, RN, PhD, COI
Associate Dean, Practice and Community Engagement, University of Kentucky, Lexington, Kentucky

Guest Editors
MARGARET M. MAHON, PhD, RN, FAAN
Advanced Practice Nurse, Palliative Care and Ethics; Associate Professor, School of Nursing, George Mason University, Fairfax, Virginia

Authors
JEAN BELLO BELASCO, MD
Clinical Professor of Pediatrics, Division of Oncology, Children s Hospital of Philadelphia, Philadelphia, Pennsylvania
MYRA BLUEBOND-LANGNER, PhD, FPNC
Distinguished Professor of Anthropology, Department of Sociology, Anthropology and Criminal Justice, Rutgers University, Camden, New Jersey; True Colours Chair in Palliative Care for Children and Young People, Louis Dundas Centre for Children s Palliative Care, UCL Institute of Child Health - Great Ormond Street Hospital, London, England
MARILYN BOOKBINDER, RN, PhD, FPCN
Director of Nursing and Quality, Department of Pain Medicine and Palliative Care, Beth Israel Medical Center, New York, New York
KAREN BUHLER-WILKERSON, PhD, RN, FAAN
Professor Emerita of Community Health Nursing and Director Emerita, Barbara Bates Center for the Study of the History of Nursing, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania
MARGARET L. CAMPBELL, PhD, RN, FAAN
Assistant Professor, Research, Center for Health Research, College of Nursing, Wayne State University; Administrative Director, Nursing Research, Nursing Administration, Detroit Receiving Hospital, Detroit, Michigan
PATRICK J. COYNE, MSN, APRN, FAAN
Clinical Director, Palliative Care Services, Massey Cancer Center, Medical College of Virginia Hospitals, Virginia Commonwealth University, Richmond, Virginia
JULIE J. EXLINE, PhD
Associate Professor, Department of Psychology, Case Western Reserve University, Cleveland, Ohio
LISSI HANSEN, PhD, RN
Associate Professor, School of Nursing, Oregon Health and Science University, Portland, Oregon
PAMELA S. HINDS, PhD, RN, FAAN
Director, Department of Nursing Research and Quality Outcomes, Children s National Medical Center; Professor of Pediatrics, The George Washington University, Washington, DC
BONNYE JOHNSON, MS, RN
Community Health Education and Outreach Coordinator, Department of Medicine, College of Medicine and Comprehensive Sickle Cell Center, Chicago, Illinois
KATHERINE PATTERSON KELLY, PhD, RN
Pediatric Clinical Nurse Specialist, Department of Nursing Research and Quality Outcomes, Children s National Medical Center; Clinical Assistant Professor, The George Washington University, Washington, DC
KATHLEEN O. KREUTZER, MEd
Assistant Professor, Curriculum, Virginia Commonwealth University School of Medicine, Richmond, Virginia
RICHARD LABOTKA, MD
Professor, College of Medicine and Comprehensive Sickle Cell Center, Chicago, Illinois
LAURIE J. LYCKHOLM, MD
Professor of Medicine, Division of Hematology/Oncology and Palliative Care, Massey Cancer Center, Virginia Commonwealth University School of Medicine, Richmond, Virginia
A. KYLE MACK, MD
Assistant Professor of Pediatrics, Division of Pediatric Hematology/Oncology/Stem Cell Transplantation, Children s Memorial Hospital, Northwestern University-Feinberg School of Medicine, Chicago, Illinois
MARGARET M. MAHON, PhD, RN, FAAN
Advanced Practice Nurse, Palliative Care and Ethics; Associate Professor, School of Nursing, George Mason University, Fairfax, Virginia
MARLENE E. MCHUGH, DNP, FNP-BC, RN
Associate Director, Palliative Care Service, Montefiore Medical Center, Bronx; Assistant Professor, Clinical Nursing, Columbia University School of Nursing, New York, New York
ROBERT E. MOLOKIE, MD
Assistant Professor, Department of Medicine, College of Medicine, Department of Biopharmaceutical Sciences, College of Pharmacy and Comprehensive Sickle Cell Center; Jesse Brown Veterans Affairs Medical Center, Chicago, Illinois
LAURA PETRI, RN, PhD
Director of Faculty Programs, American Association of Colleges of Nursing (AACN), Washington, DC
MARYJO PRINCE-PAUL, PhD, APRN, ACHPN
Assistant Professor, Frances Payne Bolton School of Nursing, Case Western Reserve University; Research Associate and Advanced Practice Palliative Care Nurse, Hospice of the Western Reserve, Inc, Cleveland, Ohio
VISWANATHAN RAMAKRISHNAN, PhD
Associate Professor, Department of Biostatistics, Massey Cancer Center, Virginia Commonwealth University School of Medicine, Richmond, Virginia
ANNA SASAKI, MD, PhD
Medical Director of Hepatology and Liver Transplantation, Portland Veterans Affairs Medical Center; Associate Professor, Oregon Health and Science University, Portland, Oregon
DENICE K. SHEEHAN, PhD, RN
Assistant Professor of Nursing, Department of Nursing, Kent State University, Kent, Ohio
THOMAS J. SMITH, MD
Professor of Medicine, Division of Hematology/Oncology and Palliative Care, Massey Cancer Center, Virginia Commonwealth University School of Medicine, Richmond, Virginia
NEVILLE E. STRUMPF, PhD, RN, FAAN
Edith Clemmer Steinbright Professor Emerita, Associate Director, Hartford Center of Geriatric Nursing Excellence, University of Pennsylvania School of Nursing, Philadelphia, Pennsylvania
MARLA DEMESQUITA WANDER, MS
Graduate Student, Department of Childhood Studies, Rutgers University, Camden, New Jersey
DEBRA L. WIEGAND, RN, PhD, CCRN, FAAN
Assistant Professor, University of Maryland School of Nursing, Baltimore, Maryland
DIANA J. WILKIE, PhD, RN, FAAN
Professor and Harriet H. Werley Endowed Chair for Nursing Research, Director, Department of Biobehavioral Health Science, Center for End of Life Transition Research; Member, Comprehensive Sickle Cell Center, University of Illinois at Chicago, Chicago, Illinois
BETSY ZUCKER, MSN, FNP
Liver Clinic/DHSM, Portland Veterans Affairs Medical Center, Portland, Oregon
Deceased.
Forthcoming Issues

Forthcoming Issues
December 2010
Mental Health Nursing
Patricia B. Howard, PhD, RN, CNAA-BC,
Guest Editor

March 2011
Magnet Hospitals and Hea