On Our Own, Together

Sally Clay

Description

On Our Own, Together describes the inner workings of eight successful peer-run services for mental health consumers, including drop-in centers, educational programs, and peer support/mentoring programs. Written by people who developed such programs, it reveals these services as a valuable resource within the mental health system and a precious necessity for many consumers.

The book clusters the COSPs into three key types: drop-in centers, which provide varied services for their members, including meals, housing assistance, and stigma-free environments; educational programs, which train mental health consumers in recovery skills for themselves and for other consumers; and services based on peer support and mentoring.

Despite their differences, the book shows, the programs share many essential characteristics. Most significantly, they demonstrate the benefits of allowing mental health consumers to operate and govern their own organizations. Also important is their emphasis on equality, mutuality, empowerment, recovery, belonging, and hope in administering services. Such core values, the book suggests, distinguish peer-run programs from the professional services that have long dominated the mental health system.

In contrast to the dry, clinical reports that make up much of the current literature, this book is written "from the inside out" and, for the most part, by the people who developed the programs and who live them every day. It reveals peer-run programs as valuable resources within the mental health system and, indeed, a precious necessity for many consumers.

Sujets

• Movements
• Mental Health
• Sociologie, société et politique
• Psychology
• Health

Informations

• Publié par: Vanderbilt University Press
• Date de parution: 10 juin 2005
• Nombre de lectures: 0
• EAN13: 9780826591852
• Langue: English
• Poids de l'ouvrage: 2 Mo

Extrait

Éà ÇàÉ / Éà ïÉŝŝ / ûîç Ôîç

Peer-run mental health programs— accounts by the people who developed them and who live them every day

“is is a book like no other. While it contains most all the knowledge one would need to develop successful peer programs, it also addresses the philosophy, values, and passion one needs to do it.e various examples of peer programs weave together to tell the larger story of how and why peer programs do work.” —William A. Anthony, Director, Center for Psychiatric Rehabilitation, Boston University

“On Our Own, Togetheris an important book providing us withan understanding of the philosophy, work and healing power of peer-run programs. Rising up from the lived-experience of people diagnosed with major mental disorders, these peer programs have evolved over decades. Sally Clay and her co-authors teach us about the principles and practices that form the common ground for all these programs while also highlighting some of the differences between them.”—Patricia E. Deegan, Ph.D.

Vanderbilt University Press Nashville, Tennessee 37235 www.vanderbiltuniversitypress.com

On Our Own, Togetherlooks in depth at eight successful peer-run programs for adults with serious mental illnesses. e book grew out of a 1998 meeting that led off a nationwide study to assess not only the effectiveness of consumer- operated services programs but also their implications for the future of mental health care in the United States.

Sally Clayhas been a leader in the mental health consumer/survivor movement for over twenty years. Instrumental in founding three consumer-run organizations—the Portland Coalition in Maine, PEOPLE in upstate New York, and the PEER Center in Florida—she worked as a therapist for Windhorse Associates, an alternative treatment program, and was a founder of Altered States of the Arts.

Cover illustration: Adapted from a poster created by Lucy Gwin ©Mouth Magazine.

Design: Dariel Mayer

ISBN 0-8265-1465-0 ™xHSKIMGy514653z

Clay On฀Our฀Own, Peer O ฀Pr n o ฀ g O ra u ms r ฀f ฀ o O r฀P w eop n l , e ฀ ฀with฀Mental฀Illness TOGETHER

Peer฀Programs฀

for฀People฀with฀

Mental฀Illness TOGETHER

Vanderbilt

Edited฀by฀Sally฀Clay With฀Bonnie฀Schell,฀Patrick฀W.฀Corrigan,฀and฀Ruth฀O

.฀Ralph

On Our Own, Together

On Our Own, Together

Peer Programs for People with Mental Illness

Edited by Sally Clay

With Bonnie Schell, Patrick W. Corrigan, and Ruth O. Ralph

Vanderbilt University Press NASHVILLE

© 2005 Vanderbilt University Press All rights reserved First Edition 2005 is book is printed on acid-free paper. Manufactured in the United States of America

is publication was made possible by the Consumer-Operated Services Program (COSP), a multi-site collaboration funded by the U.S. Department of Health and Human Services (DHHS), Substance Abuse and Mental Health Services Administration (SAMHSA), Center for Mental Health Services (CMHS), grant numbers: Coordinating Center Missouri SM52328; Penn SM52355; Florida (& California) SM52332; Maine SM52362; Boston SM52352; Michigan/Tennessee SM52367; Mt. Sinai SM52372; Chicago SM52363

e publication contents are solely the responsibility of the authors and do not necessarily represent the official views of the DHHS, SAMHSA, CMHS, or the COSP collaborating partners.

Library of Congress Cataloging-in-Publication Data

On our own, together : peer programs for people with mental illness / edited by Sally Clay, with Bonnie Schell, Patrick W. Corrigan, and Ruth O. Ralph.—1st ed.  p. cm.  Includes bibliographical references and index. ISBN 0-8265-1465-0 (cloth : alk. paper) ISBN 0-8265-1466-9 (pbk. : alk. paper)  1. Mentally ill—Rehabilitation. 2. Mentally ill—Services for. 3. Peer counseling in rehabilitation. 4. Self-help groups. RC480.5.O495 2005 362.2’04256—dc22  2004017371

Contents

Tables and Figures

Acknowledgments

Preface: Nothing About Us Without Us

I. Introduction and Background 1 About Us: What We Have in Common Sally Clay 2 e Historical and Philosophical Development of Peer-Run Support Programs  Jean Campbell

II. Drop-In Centers 3 Mental Health Client Action Network (MHCAN), Santa Cruz, California  Bonnie Schell 4 Portland Coalition for the Psychiatrically Labeled, Portland, Maine Janine M. Elkanich 5 e St. Louis Empowerment Center, St. Louis, Missouri Helen Minth

vii ix xi

3

17

67

92

108

vi

6

On Our Own Together

PEER Center, Inc., Oakland Park, Florida Compiled by Bonnie Schell and Nancy Erwin from material supplied by PEER Center directors and staff

III. Peer Support and Mentoring Services 7 GROW In Illinois Lorraine Keck and Carol Mussey 8 e Friends Connection, Philadelphia, Pennsylvania Jeanie Whitecraft, James Scott, Joseph Rogers, Bill Burns-Lynch, Terrance Means, and Mark S. Salzer

IV. Educational Programs

9 Advocacy Unlimited, Inc., Connecticut  Yvette Sangster 10 BRIDGES in Tennessee: Building Recovery of Individual Dreams and Goals through Education and Support  Louetta Hix

V. Conclusion 11 Common Ingredients as a Fidelity Measure for Peer-Run Programs  Matthew Johnsen, Gregory Teague, and Elizabeth McDonel Herr

12 With Us: Where Are We Going?  Sally Clay, with contributions from Bonnie Schell,  Patrick Corrigan, and Jean Campbell  Epilogue: Ourselves and Others

Appendixes A. Guides to the Text B.Common Ingredients of COSPs, CAP Definitions C. National Directories  Contributors  Index

123

141

159

179

197

213

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259

261 273 282 285 289

Tables and Figures

Tables

 1.1. e Sites: Eight programs and three clusters  1.2. COSP Common Ingredients by Category  2.1. Reasons for Using Peer-Run Drop-In Centers  2.2. Operating Principles of Peer-Run Support Programs  2.3. Peer-support Competencies  2.4. Highest-ranked Individual Statements  2.5. Peer-run Programs Evidence Base  8.1. Skills Targeted by the Friends Connection 11.1. Organization of the COSP FACIT 11.2. Interrater Reliability and Item Means for COSP FACIT 11.3. Performance of COSPs and TMHS Programs on FACIT (by Domain) 11.4. Performance of COSP Clusters on FACIT (Wave II) A.1. Glossary A.2. Peer-run Programs Contact List A.3. Researchers in the COSP Study B.1. Common Ingredients of COSPs, CAP Definitions C.1. National Peer Organizations C.2. Web Links for Peer Programs

5 7 32 35 42 43 46 162 226 228

230 234 261 268 273

282 283

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 On Our Own Together

Figures A.1 Disability Rights Poster 1.1. Common Ingredients Organized by Section, Category, and Core Ingredient 2.1. Peer-Support Competencies Cluster Rating Map 3.1. What Can a Typical Client Expect at MHCAN? 3.2. “God Save the Mentally Ill,” a painting by Sam Oastler 3.3. Drop-in Center Rules 4.1. An Untitled Painting by David Towne 4.2. Rules for Behavior: Purpose and Philosophy of the Portland Coalition Code of Conduct 5.1. Goals of the Empowerment Drop-in Center 6.1. e First PEER Center 6.2. e PEER Center in 2002 6.3. Layout of the PEER Center 7.1. e Twelve Steps of Recovery and Personal Growth 9.1. AU Logo 9.2. Advocacy Education Program 9.3. Samples from Individual Advocacy Reports 9.4. Samples from Individual Advocacy Reports of Legislative Advocacy 9.5. Testimonials from AU Graduates 10.1. e BRIDGES Course 10.2. “A Voice from the Region,” by Sam Viar 11.1. Performance on FACIT by COSPs and TMHSs 11.2. Performance on FACIT by COSP models and TMHSs

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8 43 69 81 86 96

99 112 125 126 130 146 180 186 191

193 196 205 206 231 235

Acknowledgments

First, thanks go to Maine researcher Ruth Ralph, who made my work on this book possible. When I lost my affiliation with the PEER Center and thus with the Consumer Operated Services Program study (the COSP study), she organized the book project so that I could continue as editor. Many of the other principal investigators—including Susan Essock, Tom Summerfelt, Mark Salzer, Patrick Corrigan, and Sally Rogers—pitched in to support us. Bonnie Schell and Patrick Corrigan, the other editors of this book, gave me prompt and thoughtful reviews of the chapters submitted, while Ruth helped in assembling and submitting the final manuscript. In ad- dition, Bonnie wrote the chapter about her drop-in center, and she con- tributed her writing to two other chapters. Pat supplied much personal support, along with valuable guidance from his experience as publisher of another small press. Without these three editors—Ruth, Bonnie, and Pat—this book would not have come to be. I am grateful to all of my peers who were members of the COSP Con- sumer Advisory Panel (CAP) and, as such, deeply involved in developing the list of common ingredients and often writing the individual chapters about their programs. Dianne Côté was a valued consultant every step of the way. e color scheme and type design on the book jacket are based on a graphic design by Kevin C. Murphy, an artist affiliated with MHCAN in California. Other consumer/survivors worked professionally as members of their site’s research team, and at least three of the principal investiga- tors for these teams were consumer/survivors, including Jean Campbell of the Coordinating Center. I personally would like to express my appreciation to the people at

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