"Save My Kid"

M. Gengler Amanda

Description

A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals-deeply rooted in the culture of illness and medicine-play in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake.

Sujets

• Sociologie, société et politique
• Health

Informations

• Publié par: NYU Press
• Date de parution: 21 janvier 2020
• Nombre de lectures: 0
• EAN13: 9781479834327
• Langue: English
• Poids de l'ouvrage: 1 Mo

Extrait

“Save My Kîd”

“Śàé  ” How Families of Critically Ill Cildren Cope, Hope, and Negotiate an Unequal Healtcare System

Āàà . éé

N E W Y O R K U N I V E R S I T Y P R E S S é ô

 É   Ô   Û    É  Ś      É Ś Ś é ô .ûéŝŝ.ô © 2020  é ô Ûéŝ Ā ŝ éŝéé éééçéŝ ô éé éŝéŝ (Ûŝ) éé àççûàé à é é ô . éé é àûô ô é ô Ûéŝ éŝŝ ŝ éŝôŝé ô Ûŝ à à àé éé ô çàé ŝçé é àûŝç àŝ éàé. à ô Çôéŝŝ Çààô--ûçàô àà àéŝ: éé, Āàà ., àûô. é: “Śàé  ” : ô àéŝ ô ççà  çé çôé, ôé, à éôàé à ûéûà éàçàé ŝŝé / Āàà . éé. éŝçô: é ô : é ô Ûéŝ éŝŝ | çûéŝ ôàçà éééçéŝ à é. éiéŝ: LCCN 2019004712 | ISBN 9781479863938 (çô) | ISBN 9781479864621 (àéàç) Śûéçŝ: LCSH: Ççà  çé—éçà çàé—Ûé Śàéŝ. | Ççà  çé—à éàôŝŝ. | àéŝ ô éà  çé—ŝçôô. | Çààŝôç éŝŝ—Śôçà àŝéçŝ—Ûé Śàéŝ. | Ç éà ŝéçéŝ—Ûé Śàéŝ. | éà ŝéçéŝ àççéŝŝ—Ûé Śàéŝ. Çàŝŝiçàô: LCC RJ47.7 .G46 2019 | DDC 618.92/0029—ç23 Ç éçô àààé à ŝ://çç.ôç.ô/2019004712

é ô Ûéŝ éŝŝ ôôŝ àé é ô àç-éé àé, à é  àéàŝ àé çôŝé ô ŝé à ûà. é ŝé ô ûŝé éôéà éŝôŝé ŝû- éŝ à àéàŝ ô é éàéŝ éé ôŝŝé  ûŝ ôû ôôŝ.

àûàçûé  é Ûé Śàéŝ ô Āéçà 10 9 8 7 6  4 3 2 1 Āŝô àààé àŝ à éôô

For Benjamin, Noa, Brent, Jayden, Sawn, and Deirdre, and for my fater, Dale

“ôé” ŝ é   éàéŝ - à éçéŝ  é ŝôû - Ā ŝŝ é ûé ôû é ôŝ –

Ā éé ŝôŝ -à à - Ā ŝéééŝ - é àé -ŝ éà - Ā ŝôé ûŝ é é ŝô - à çôû ààŝ é é  à é ŝô à à -

’é éà   é çéŝ à - Ā ô é ŝàéŝ Śéà - é -éé - Éé,  àŝé à çû -ô é. —É çŝô, “ôé ŝ à   éàéŝ”

Contents

Preface

Part I: Famîlîes în Crîsîs  . ôé ŝ à   éàéŝ  . Śû àéŝ ô Ççà  Çé

Part II: Unequal Illnesses  . Çàé-Çàà: Ç é ûŝ ô é ÛŚ éàçàé Śŝé  . Çàé-Éûŝ: Śà ô é éçà Śééŝ  . é à Śç Çàé Śàééŝ:  Éôôà Éûû

Part III: Tangled Up în Hope  . é Éé ŝ ô Éôû  . é à à éàç ô ôé  . Éôôà éôûŝ àŝ: éŝŝ ààéé, Éôô ààéé, à é ôûçô ô éàçàé éûàéŝ Acknowledgments Appendix A: Doing Fieldwork in Emotionally Fraugt Settings: A Brief Reflection Appendix B: Family and Pysician Demograpics Notes References Index About te Autor

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