Second Chances

Susan Reynolds Whyte (Editor)

Description

During the first decade of this millennium, many thousands of people in Uganda who otherwise would have died from AIDS got second chances at life. A massive global health intervention, the scaling up of antiretroviral therapy (ART), saved them and created a generation of people who learned to live with treatment. As clients they joined programs that offered free antiretroviral medicine and encouraged "positive living." Because ART is not a cure but a lifelong treatment regime, its consequences are far-reaching for society, families, and individuals. Drawing on personal accounts and a broad knowledge of Ugandan culture and history, the essays in this collection explore ART from the perspective of those who received second chances. Their concerns about treatment, partners, children, work, food, and bodies reveal the essential sociality of Ugandan life. The collection is based on research undertaken by a team of social scientists including both Western and African scholars.Contributors. Phoebe Kajubi, David Kyaddondo, Lotte Meinert, Hanne O. Mogensen, Godfrey Etyang Siu, Jenipher Twebaze, Michael A. Whyte, Susan Reynolds Whyte

Sujets

• Médecine
• VIH
• Uganda
• Ouganda
• HIV

Informations

• Publié par: Duke University Press
• Date de parution: 15 février 2015
• Nombre de lectures: 0
• EAN13: 9780822375975
• Langue: English
• Poids de l'ouvrage: 1 Mo

Extrait

S E C O N D C H A N C E S

C r i t i c a l G l o b a l H e a lt h

E V I D E N C E , E F F I C A C Y , E T H N O G R A P H Y

Eîé by çàé Āàŝ à Jôãô Bé

SE C O N D C H A N C E S

Sûŝà Réyolŝ Wyé, Eîo S u rv i v i n g A I D S i n U g a n da

Duke University Press ûà à ôô 2014

© 2014 ûé Ûéŝ éŝŝ Ā ŝ éŝéé é  é Ûé Śàéŝ ô Āéçà ô àç-éé àé ∞ éŝé  ààé . Ś éŝé  ô ô  Çôéé

à ô Çôéŝŝ Çààô--ûçàô àà Śéçô çàçéŝ : ŝû àŝ  Ûàà / Śûŝà éôŝ é, é. àéŝ ç—(Ççà ôà éà : ééçé, éïçàç, éôà) çûéŝ ôàçà éééçéŝ à é. isbn 97-0-22-79-7 (çô : à. àé) isbn 97-0-22-0-4 (. : à. àé) 1. aids (ŝéàŝé)—àéŝ—Ûàà. 2. hiv-ôŝé éŝôŝ—Ûàà. . é, Śûŝà éôŝ. . Śééŝ: Ççà ôà éà. rc606.4ŝ4 2014 62.19697'920096761—ç2 2014012919]

Çôé ôô: Ś ô é Āéôà éà Çç à é Ôûàé éàé (Ô...) à ààô ôŝà, àŝéŝé ŝç, Ûàà (21 Jàûà 201). ôôà  Śûŝà éôŝ é

ûé Ûéŝ éŝŝ àéû àçôééŝ é ŝûô ô é àŝ ŝ ô ôé Āfàŝ, ç ôé ûŝ ôà é ûçàô ô ŝ ôô.

CASE X . Rachel Buckets of Medicine

CASE II . Saddam Treatment Programs

Polyày

176 Chap ter seven  Wok

200 Chap ter eight  oo

 104

 14

 12

C O N T E N T S

CASE I . Robinah and Joyce The Connecting Sisters

CASE VII . John Working Contingencies

167

Chapter Five Pàéŝ

CASE V . Alice Keeping a Good Man

26 Chap ter eleven  Lîé

24 Chap ter ten  Méîçîé

Açkowlééŝ Bîblîoày Coîbûoŝ Iéx

1

4

47

6

71



2

CASE IV . MamaGirl & MamaBoy Family Matters

9

0

CASE III . Suzan The Necessity of Travel

2 27 299 01

Chapter Four àîlîéŝ

Chapter three Mobîlîy

Introduction Té îŝ Gééàîo

Chapter one Coéçîoŝ

27

22 Chap ter nine  Boîéŝ

Chapter t wo Clîéŝî

21

CASE XI . Dominic A Multitude of Adversities

12

191

CASE VIII . Hassan Soft Food and Town Life

Chapter six Cîlé

CASE VI . Jackie Children without Grandparents

29

CASE IX. Jolly Appearances and Numbers

 119

River Nile Gulu • Pakwach Lira • Apac • Kaberamaido Masindi • • • Soroti • Kumi Lake Albert Pallisa Mbale • • Luweero Mukuju • Busolwe • • UGANDA Bombo • Tororo • Jinja • • Kampala Busia

DEMOCRATIC REPUBLIC OF THE CONGO

RWANDA

Mbarara •

SOUTH SUDAN

N

TANZANIA

LakeVictoria

KENYA

Kitgum •

MAP 1 Uganda, showing places mentioned by our interlocutors. (Map by Kristian Bothe)

Masaka •

P O LY G R A P H Y

Séço Càçéŝŝ éé à ôôà ô à éé ôûé  é çô- éôà ŝéŝé.  ŝ é ô ô é éôé, ôû ô éà à ôû ô Ûàà, çôôà çôŝé ô àŝŝéé ôé çôô ô ô àéà àôû à ûqûé àçé à é  Āçà ŝô. ôôàŝ àé àôŝ à- àŝ ŝôô ôôŝ, é  à ŝé àûô ô ŝçéŝ é àà ô é ôé ŝô.  é àûé ô ŝ, é çàô ààŝ û éLéç é çôûôŝ ô çôéàûéŝ, îé àŝŝŝàŝ, éééŝ, à ôàŝ. Eé ôûéŝ àé ûé àûôŝ, éàç  à ŝé ô àà à à ààŝŝ, ôTé ô - éé çôûéŝ, éé ô ûàé é ŝàé ôéà éé. Ôû ôô ŝ à ôà, é  à ŝé ô àûôŝ àôû à çôéçô ô éôé à àéŝ ô ŝàé çôô ççûŝàçéŝ.  ŝ “û-ŝé”  à é àŝ ô ééŝ (à éàŝ) éé à ô, à  ŝ ûŝé  à  éŝçéŝ à àé ô éôé, ôçàôŝ, éàé ôàŝ, à éŝôŝ ô çôçé. àé ô- éé, é ŝôéŝ à çàéŝ ô ôé ôéàç ààé àôû é é- éàô ô éôé ô é àçqûé ûôéîçéç ŝôé ( aids ) àŝ à àà ŝéàŝé à éééçé é àé ô é-ôô àéôà éà. é ôàç ô ŝûŝ é àŝ é àé ŝé ôûŝééŝ—ô û- àé ô é éŝ à é ŝôçà ûqûééŝŝ ô à ééàô. ŝ ôà ôéŝ ô éé ô é à é ééçô, û é ôŝé à- çéŝ,  éçôŝ çàéŝ  é (ŝôçà) ô ôççû ŝûàéôûŝ 

éŝôŝé ô qûéŝôŝ—àôû ô ô é  é ûà ûôéîçéç ûŝ ( hiv ). ééàŝ é ééçôŝ àé ŝûôŝé ô àŝŝéŝŝ é à ô éô- é’ŝ ééçé, ôû ôà àŝŝééŝ ééçé à éŝ é éàé é ôôû ô àŝŝéŝŝ ôû ééàôŝ ô é îŝ ééàô ô aids ŝû- ôŝ à ŝ ŝéçô çàçéŝ. Ôû çôûŝ ô àéà çôéŝ ô ô çôéŝàôŝ  éôé àôû é éŝ éôé à àTé àéôà éà ( art ) à ô ééàé ŝŝ ô é ôéŝ. B ŝé ô é éôŝéçé àççôûŝ à ô- ô é ôé é, é çàé ô àé à ŝéŝé ô é éçôŝ é éŝ éé à à é çôçéŝ ô ç é éûé  çôéŝàô àTé çôéŝàô. é àé ô éŝéé é é à ŝûàééŝŝ ô é- ŝôŝ, ŝô é àé û ôû ôô àôû ééé éŝôà àççôûŝ. é àé é à “çàŝéŝ”—ôàçà éŝôŝ ô ôû ôà ŝàô ô é  ééé çàŝé éô ô é àçéŝé Śçôô. Śô ôTé, éçéŝ ô ééŝ ô ôçûŝ ôû ŝçûŝŝôŝ àé ûŝé àŝ àéçôéŝ ô ŝàŝôŝ ô éàé à ô é ààŝ àŝ ô àé.  é ôçéŝŝ, éŝ à çôéŝ àé çôé û, éà é éàé  é ôŝŝ ô à àéàé é- éàô. Eé ôû é àé çôŝé à éé éŝé àççôûŝ  éàô ô çéà ééŝ, éàç ôéŝ à ŝûûŝ ô ôàô à éàŝ ééà ô ôé ôçŝ, àŝ é. Ôû éô ŝ ô é éàéŝ é ôôû ô    çàŝéŝ, ô çôàé é, à ŝéé ô é çôéé ôé àôé. fééàô àôŝ ôé ééŝ ééàzàôŝ. Eàç ô éŝé ŝôéŝ éàçéŝ à ààçà çàé àôû é à çôçéŝ ô ééŝ ô é îŝ ééàô. é çàé ééŝ ô ô - éç ôô é çàéôçà ééŝŝ ô à ôà éà àçôŝ—ŝûç àŝ àééçé, ŝà, ŝçôŝûé, àŝŝŝô, à çôûŝé (àôû à ô éŝé àé ûàé ô ôû éôçûôŝ’ éŝéçéŝ). é ŝà çôŝé ô é àfàŝ à éôççûàôŝ ô ŝéçô-çàçé é ôŝ. ôû, éŝé àé àôû é ééà ààŝ ô éàé (çàéŝ 1–), à éàôŝ (çàéŝ 4–6), à éôô à à é ô éçàô (çàéŝ 7–11). é éà à é éé ŝû à ééàô ôô ŝàé àûà;  ééé à ôû ôû éôçûôŝ’ àççôûŝ, û àŝô ôû ôû ô éééçé. é à é é ŝûàô éôé aids éàé àŝ àà- àé, à é éé ô ôéé ôé é éàŝ é é àéôà éçéŝ éé ôé ôû. ûŝ, ôû ô ŝôçà ôçàô àŝ éŝŝéà ô é é ŝô é éé  ô àŝ. çàé à , é ôéŝ ééŝ ô é éà,  ôû îŝ îéô  Ûàà ô 1969 ô 1971, ô ŝô ô àTé éééçé,  é é– Ā éô ôû ôûé àçqûààçéŝ ŝôééŝ ŝû çà é “ôà Ûàà.” éû éqûé àTé

 P olygraphy

19 à éé çôàç  àéŝ é à ô, é éŝŝé é ô- ŝé ô é ééç à ôûé é ôŝŝ ô à éŝ ô ôû éà àŝ àŝ ôû ôçôà ŝûéŝ. é éŝ ô ôû ôû çàé ô àé àŝ éŝéàçéŝ  é é ô aids . ôé éé à àé Ô. ôéŝé éé çôŝé - ôé  éôé ô éé ŝç à  û é îéô  éàŝé Ûàà. ôé Eà Śû, Jéé éàzé, ôéé àû, à à àôô, é à Ûààŝ, éé àféçé  ŝûfé à éà  é ô àéŝ à àô éŝ à çôéàûéŝ. Eé ôé à é ô éà, é çôû ô é àà ô aids . ûç à ô é ééç àŝ çôŝà àTé 196; àé ŝéŝŝ à ééŝŝéŝŝ ôé é àç ô éàé àŝ ûŝ àŝ çôŝà û 2004. é éà ô ôéé ûé à Eàçéé ô éŝéàç Çààç ôéç à à ô àé 1994 ô 200. Śûôé  é àŝ éà- ôà ééôé Āéç,  é ô àŝ ûéŝéŝ  é Ç éà à ééôé Çéé, à ŝà, çôŝŝ-ŝçà û à àééé Ûéŝ. é éé ô ôû çôôéàô àŝ é çà éàô ééé çôûéŝ à éà ŝŝéŝ. é çàé ôû ôéç torch , ô ôôô Çôû éà, ôôô é é ŝç éé ôû ôéç àŝ àçôé à éé,  é é, îé ô ûŝ à ôé ô-é éôàç éŝéàç ô ôçôà ŝŝéàôŝ. Āôû ôû ôéç à  ô àéŝŝ aids ôé éŝéàçéŝ éé Lôç ô à ôç), é  ŝûéŝ (à  éà ôéŝ à àéŝ ŝéé éàé ô à ŝ ô ôéŝ, ç ôé à éçéŝŝà çôé ô ôû ô ô ŝéçô çàçéŝ ôà é é ô é torch ôéç. é ôûŝééŝ ôé ééàôŝ  à àçàéç ééàôçà ŝéŝé. - çàé à  àé é ààéŝ. Ûé torch , çàé àŝ é ŝûéŝô ô à, é à éçûé  Śôçà ô à Śôçà Āŝàô à àééé.  àŝé é ô àéŝ, ô  çôéàûéŝ, ôé à àé. é é ééàô ô Ûààŝ, Jéé, ôéé, à ôé, à é ô ô éà ôçôàéŝ  àôûŝ àŝéçŝ ô aids  Ûàà àTé torch éé. àé ŝûéŝé Jéé, ô àŝ ààé é ééé  Çôéàé. à à  àé çô-ŝûéŝ ôéé, ô ŝ éŝéé à àééé Ûéŝ. ĀTé çôé à àŝé’ŝ à Çôéàé, ç  çô-ŝûéŝé, ôé é ô ô éà à ôçôàé à é Ûéŝ ô àŝô, ô  Jàé Śééé, ô é é ôû ôû éŝéàç. Āçàéç ééàôŝ àé ûç ŝôé à ŝ ééàôŝ; ŝ,  à ŝààŝ, ôû éàéé  ôé àôé àŝ éé éû à ûû. é éàé ô éôé  aids îŝ éçàé àààé  Ûàà,  àŝ à ôô ééŝé ô ôŝ éôé. Āŝ é çé é,  çàé àôŝ 

P olygraphy 